Monthly Archives: September 2003

In order for patients with pemphigus and pemphigoid to get control of their disease, there are certain drugs that patients must take. Prednisone is the first drug of choice for treating these diseases, and immunosuppressive drugs are often given as well to help patients reduce the doses of corticosteroids (prednisone/prednisolone).

Prednisone (prednisolone) is one of the most successfully and one of the most commonly used drug for treating a variety of diseases, but it can have many side effects. Some of the effects steroids can have, due to long term use, on our health are: weight gain, increased appetite, loss of muscle mass and bone density, increased fatty deposits, reduction in zinc, Vitamin D, and C levels; loss of potassium, fluid retention, gastric problem, hypertension, high cholesterol, and the body's ability to handle blood sugars.

by Jennifer Williams

As all pemphigus and pemphigoid sufferers are quite aware, high doses of steroids are generally used in the first phase of treatment to control the blistering. Often to relieve the unpleasant side effects of such great doses, an immunosuppressive drug (used to prevent production of antibodies) is added into the mix to lessen the steroid dosage. As the side effects of steroids subside, patients are faced with a new challenge: coping with side effects of the immunosuppressive drugs.

IT IS IMPORTANT TO REMEMBER THAT MOST PEOPLE TOLERATE THESE DRUGS WELL, AND THAT ALL THE POSSIBLE SIDE EFFECTS DO NOT HAPPEN IN EVERY PERSON.

by Rosalind Joffe

  1. Focus On What You Can Control. You may not be able to control the course of your illness. You can control the direction you take and the choices you make regarding that illness in the workplace.
    View your chronic illness as a challenge to meet, not an obstacle in the way.
  2. Ignore The Nay Sayers. Many people will tell you that work is stressful and that rest is best for people with chronic illness. Ignore them. Unpleasant work or too much work is negative stress and it can be bad for anyone’s health. Yes, you have more challenges now than you did before, but throwing in the towel is not the only option.
    Shape your work environment to meet your needs and you’ll help yourself.
  3. Come Out Of The Closet. Chronic illness is nothing to be ashamed of. If your illness impacts your work, keeping it a secret depletes your precious energy and gets in your way. Maintain your right to privacy and be judicious with your information, but don’t take on the burden of pretending that you don’t have a chronic illness.
    Be as public as you need to be and as private as you want to be.
  4. Don’t Just Survive – Thrive. It’s easy to feel that survival is enough. And most people who love you won’t expect more from you than that. But chronic illness or not, you weren’t born for mediocrity. Raising the bar doesn’t mean doing more than you can; it means aim high and seek what you need to thrive.
    Reach beyond relief; go for the satisfaction.
  5. Control The Message. Other people on the job will be looking to you to set the tone, and you can influence the way they respond to your illness. Design and control your message: What and how much do you want to say? Who do you want or need to say it to? When and where do you want to talk?
    Get out in front of the conversation.
  6. Don’t Let Your Illness Define Who You Are. Some people might try to paint you as a martyr; others may consider you less worthy of
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    recognition or promotion. Neither extreme works to your advantage; each gets in your way. The message you want to convey is that your chronic illness is simply one of several cards in your deck; just like everybody else.
    Having a chronic illness is neither a source of shame nor a source of pride.

  7. Look for the Silver Lining. Although you may not believe it now, workplace success in the face of illness is transforming. Many of us have found new strength and confidence – qualities we never knew we had – as a result of our illnesses. We have used this new found power to face other life challenges.
    It need not all be about the bad news.

Rosalind Joffe, M.Ed.
rosalind@cicoach.com
www.cicoach.com

Thank you.

Rosalind Joffe coaches individuals to thrive in the workplace. Drawing on 25 years of work experience, living with chronic illness, she helps others to prosper in their work. Rosalind holds a B.S. in Communications and an M.Ed. from Boston University, Executive Coaching Certification from the Corporate Coach Institute, and Family Mediation Certification from Academy of Family Mediators.

 

©2003 Rosalind Joffe. All rights reserved. PLEASE SHARE THIS, with attribution, in its original format.

by Sarah Brenner, MD, Jacob Mashiah, MD, Einat Tamir, MD, Ilan Goldberg, MD and Yonit Wohl, MD, Department of Dermatology, Tel Aviv Sourasky Medical Center, and Sackler Faculty of Medicine, Tel Aviv University, Israel

Pemphigus is generally considered to stem from a genetic predisposition to the disease triggered and/or aggravated by one or more external factors. An acronym has been suggested from the name of the disease, PEMPHIGUS, to encompass those factors: