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Monthly Archives: May 2009

The Powerful, Positive Support of People

The IPPF Annual Meeting provides a unique, quality opportunity for all who attend. While the IPPF has a website, discussion group, local support groups and quarterly newsletter, the in person face-to-face annual meetings continue to enable patients, caregivers and doctors

Posted in Issue 57 - Summer 2009

The View from Here

  When I was first diagnosed with PV 25 years ago, I had no one to talk with about my disease. There was no internet and I felt alone – that I was the only person in the world with

Posted in Issue 57 - Summer 2009

First-ever AAD Bullous Disease Symposium Surpasses Expectations

A large hall was allocated for the session, which was open to any registrant without an additional fee, and was full for most of the session, with about 300 dermatologists in the room.

Posted in Issue 57 - Summer 2009

Expanding Awareness to Researchers in Immunology

The IPPF Leadership was awarded one of only four scholarships to participate in a pilot program launched by the American Academy of Immunologists

Posted in Issue 57 - Summer 2009

Advocacy: The Voices of Many

Right now, as many of you know, once you’ve been approved for disability most cases take 24 months before you can be approved for Medicare.

Posted in Issue 57 - Summer 2009

First Patient/Doctor Meeting in Italy Concludes

The first Patient/Doctor Meeting was held in Italy on May 18, 2009 in the IDI Dermatological Hospital, Rome.

Posted in Issue 57 - Summer 2009

Join Raymond and Carolyn for Another Exciting PEM Friends’ Away Weekend

Excluding the hosts, Raymond and Carolyn Blain, we already have the names of eight people who will be attending, so hurry towards a decision about joining us! These weekends are great fun, and of particular value to those experiencing a

Posted in Issue 57 - Summer 2009

PEM Friends Meeting Recap

For the first time since our group started meeting two or three times a year for lunch, on the 20 February 2009 we held a lunch outside London.

Posted in Issue 57 - Summer 2009

Hee-Hee! Ha-Ha! White Elephants…

Well, she had to get us started by laughing about the “white elephant” in the room – was it true that our Certified Laughter Leader’s last name really was, “Hee”? Barbara Hee?

Posted in Issue 57 - Summer 2009

Comparative effectiveness research should inform decision making

Are patients swimming in a sea of health information? Or are they drowning in it?

Posted in Clinical Research, Treatment and Medication


The P/P Registry has been approved by the Western Institutional Review Board (WIRB) and is actively enrolling participants.