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Monthly Archives: May 2010

Registry Advocacy

IPPF MAB member Dr. Ani Sinha discusses the importance of a disease registry

Posted in Medical, P-P Patient Registry, Registry-based Research

NDRI Facilitates Major Medical Breakthrough in Cystic Fibrosis Research

Cystic lungs provided by NDRI lead to drug discovery in CF treatment.

Posted in Around the Globe

High-Tech Alternatives to High-Cost Care

Mention health care reform and the image that instantly comes to mind is a big government program. But there is another broad transformation in health care under way, a powerful force for decentralized innovation. It is fueled in good part

Posted in Around the Globe

Experts say travel health insurance can be crucial

Plane tickets, check. Passport, check. Medical evacuation insurance? It’s probably not something most people think about when packing for a vacation.

Posted in Around the Globe


The P/P Registry has been approved by the Western Institutional Review Board (WIRB) and is actively enrolling participants.