The Southern California Pemphigus & Pemphigoid Support Group Meeting
was held on Saturday, October 25, 2015 at the Santa Monica Public Library
in the Martin Luther King, Jr. auditorium. Dr. Jennifer Haley, Dermatologist,
Kaiser Permente and Dr. Vanessa Holland, Dermatologist, University
of California, Los Angeles answered questions from patients and loved ones
for two hours. There were 31 people in attendance. Patients asked a lot of
important questions regarding treatments, nutrition, vaccinations, and
on-going research. Also, many engaging discussions with the doctors and
patients occurred. Hearing other patient experiences in dealing with this rare
disease was healing. Afterwards, a lively social gathering was held outside
on the patio with refreshments provided by Biofusion, who sponsored the
meeting. Many came away with new friendships and an enthusiasm for next
If you are interested in hosting a support group meeting in your local area
please contact Noelle Madsen at email@example.com.
A group of PEM Friends enjoyed lunch together in London, November
2015. We met to share their experiences and advice. We were particularly
pleased to be joined by Dr. Jane Setterfield, reader and honorary consultant
in dermatology in relation to oral disease at Guys and St Thomas’
Hospital. Dr. Setterfield’s enormous experience and understanding of bullous
disease and advice on its treatment, was well received. Everyone had
a chance to talk with her and get a lot of questions and concerns answered.
It’s always good to meet others who have faced similar challenges and
this was a great opportunity to do so in a relaxed, informal environment.
On October 18, 2014, the Houston Support Group
held its FOURTH meeting of the year! Patients gathered
at the Bayland Park Community Center and
discussed their current disease states, provided
feedback and support, and overall had a very nice
discussion amongst peers.
The Houston support group meets every 3 months
at the Bayland Park Community Center. If you have
questions about the support group leader, or want
some delicious pralines, contact Mary Lee Jackson at
left: Mei Ling
Dr. Haley, Mei
far left: Isobel Davies, Dr. Setterfield, and
the PEM Friends gather in London, UK.
DO YOU HAVE A
LET US KNOW! It doesn’t have to be formal
to be a group! All you need is another person,
a place to sit, and time to talk. The important
thing is to be able to share your experiences
and get the support you need.
If you want to find others in your area, contact
Noelle Madsen at firstname.lastname@example.org.