My good friend, Marty, was pitching that day, and things started looking up. As we entered the final inning, we were winning, but we were three outs away from victory. I will spare you the Hollywood details: We won in “Bad News Bears” fashion…a little trickery and a lot of luck. We still were the worst team in the league, but that day we were winners. I happily celebrated my 11th birthday triumphant with my friends and family.
Recently I spent a weekend with friends and family at the 16th Annual Patient Conference in San Francisco. I have to thank our hosts, Dr. Peter Marinkovich and Bay Area Support Group Leader Prem Jain for having us in their home town. Other Conference Committee members included Dr. Terry Wolinsky McDonald (co-Chair/IPPF BOD), Greg Wright (IPPF BOD), Dr. Razzaque Ahmed (2012 Annual Meeting host), Nancy Stoeckel (KabaFusion and pemphigoid caregiver), Sonia Tramel (former IPPF BOD member), and Marc Yale (Peer Health Coach). The planning started in July 2012 and ended the day before the meeting started. This year’s event was a success for many reasons, but these people made it all happen. Thank you.
If you didn’t get a chance to join us or if you did and just want a refresher, the audio has been transcribed for your reading pleasure! And PHC Jack Sherman is producing segments that will have the slides and audio combined – and be available as a DVD! You can find the 2013 Patient Conference materials online at www.pemphigus.org
This also is the first newsletter being done by someone other than me since #39 back in 2004. Thank you to Maeve Norton for her layout and graphic design skills. We look forward to this and future issues. Volunteerism is becoming more and more important in our operations as we remain lean, but still provide high-level programs and roll out new projects to benefit our community.
In celebrating our P/P family and friends, we extend our congratulations to Toby Speed who was married in May, and honor the memory of Bob Stillman who passed away in April. We are a small community – a family – and events like these affect all of us. We continue to share in the joys and sorrows of life together as one.
I hope you enjoy the Summer ahead with your family and friends. Remember, we’re here for you!