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Conference Materials

Conference video footage (unedited)

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3:00 pm	Registration Opens
4:00 pm	Welcome, Opening Remarks and Weekend Overview (Sahana Vyas and Will Zrnchik)
4:15 pm – 6:00 pm SESSION I – INTRODUCTION TO P/P
4:15 pm	Pemphigus: Disease Classification & Clinical Features (Animesh Sinha)
4:45 pm	The IPPF Registry and PV: What the Data Tells Us (Amit Shah)
5:00 pm	Pemphigoid (Razzaque Ahmed)
5:30 pm	Q&A (Ahmed, Sinha, Shah)
6:00 pm – 8:00 pm	Welcome Reception sponsored by KabaFusion

8:00 am	Morning Beverage Service
8:00 am	Registration Opens
8:30 am	Opening Remarks (Sahana Vyas and Will Zrnchik)
8:35 am	IPPF Awareness Campaign (Kate Frantz)
8:45 am	Being a Citizen of the IPPF (Badri Rengarajan)
9:00 am – 10:30 am SESSION II – TREATMENT OPTIONS
9:00 am	Treatment Options (Grant Anhalt)
9:30 am	Personalized Treatment (Sergei Grando)
10:00 am	Treatment Side Effects (Razzaque Ahmed)
10:30 pm	Understanding IVIg (Mike Rigas)
10:50 am	Break (coffee, tea, water, breads, etc)
11:00 am – 12:30 pm SESSION III – LIVING WITH P/P
11:00 am	Building a Personal Support Network (Victoria Carlan)
11:20 am	Awareness and You (Kate Frantz)
11:40 am	Stress and Autoimmunity (Firdaus Dhabhar)
12:30 pm	Afternoon Overview and Instructions (Sahana Vyas and Marc Yale)
12:30 pm	Attendees on their own / Speaker Open Discussions

5:30 pm – 10:30 pm	IPPF 20^th Anniversary Gala Celebration
5:30 pm – 6:00 pm	Cocktail Reception
6:00 pm – 7:00 pm	Dinner
7:00 pm – 7:10 pm	Congressman Danny Davis Keynote (Sahana Vyas)
7:10 pm – 7:15 pm	Recognizing 20 Years (Grant Anhalt)
7:15 pm – 7:20 pm	TBD
7:25 pm – 7:30 pm	Founder’s Award Presentation (Zrnchik/Segall)
7:30 pm – 10:00 pm	Casino Night and Live DJ
10:00 pm	Chip Counts and Prize Selections
10:30 pm	Evening Ends

8:00 am	Morning Beverage Service
8:00 am	Welcome Back and Workshop How-To (Sahana Vyas and Marc Yale)
8:05 am	Patient Panel Discussion (PHCs, invited patients)
8:35 am	IPPF and You (Badri Rengarajan and Will Zrnchik)
9:00 am – 11:20 am SESSION IV – WORKSHOPS (snacks/beverages available)
Workshops running concurrently; attendees SELECT ONE WORKSHOP FOR EACH BLOCK Each workshop is 40 minutes with 10 minutes between. Formats may vary (10 minutes presentation, 30 minutes Q&A; 10 minutes presentation, 20 minutes practical application, 10 minutes Q&A; 20 minutes presentation, 20 minutes Q&A; Group Discussion)
9:00 am – 9:40 am	Block I Diet and Nutrition (Vicky Starr) Reducing Stress through Meditation (Mei Ling Moore) IVIg Insurance and Reimbursement Issues (KabaFusion) Caregivers and Family (Scott Oling)
9:50 am – 10:30 am	Block II Diet and Nutrition (Vicky Starr) Oral Care and Hygiene (Sandra Boody) The Science of Pemphigus at the Cellular Level (Ani Sinha) P/P Awareness Focus Group (Kate Frantz)
10:40 am – 11:20 am	Block III Pemphigus & Pemphigoid Below the Belt (Razzaque Ahmed) Ocular Concerns and Care in P/P (Ali Djalilian) Reducing Stress through Hypnotherapy (Janet Segall) Insurance and Reimbursement Issues (Walgreens)
11:30 am – 12:45 pm SESSION V – Ask the Experts (Moderator: Sergei Grando)
11:30 am – 12:00 pm	Q&A (presubmitted questions)
12:00 pm – 12:45 pm	Q&A (open mic)
12:50 pm	Closing Remarks

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