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2014 Patient Conference Chicago IL

By webadmin,

Posted by webadmin

On April 22, 2014

We are experiencing some web difficulties. We apologize for any inconvenience.

Conference Materials

Conference video footage (unedited)

Theconference stream uses LiveStream services.

Friday, April 25, 2014

3:00 pm Registration Opens
4:00 pm Welcome, Opening Remarks and Weekend Overview (Sahana Vyas and Will Zrnchik)
4:15 pm – 6:00 pm SESSION I – INTRODUCTION TO P/P
4:15 pm Pemphigus: Disease Classification & Clinical Features (Animesh Sinha)
4:45 pm The IPPF Registry and PV: What the Data Tells Us (Amit Shah)
5:00 pm Pemphigoid (Razzaque Ahmed)
5:30 pm Q&A (Ahmed, Sinha, Shah)
6:00 pm – 8:00 pm Welcome Reception sponsored by KabaFusion

Saturday, April 26, 2014

8:00 am Morning Beverage Service
8:00 am Registration Opens
8:30 am Opening Remarks (Sahana Vyas and Will Zrnchik)
8:35 am IPPF Awareness Campaign (Kate Frantz)
8:45 am Being a Citizen of the IPPF (Badri Rengarajan)
9:00 am – 10:30 am SESSION II – TREATMENT OPTIONS
9:00 am Treatment Options (Grant Anhalt)
9:30 am Personalized Treatment (Sergei Grando)
10:00 am Treatment Side Effects (Razzaque Ahmed)
10:30 pm Understanding IVIg (Mike Rigas)
10:50 am Break (coffee, tea, water, breads, etc)
11:00 am – 12:30 pm SESSION III – LIVING WITH P/P
11:00 am Building a Personal Support Network (Victoria Carlan)
11:20 am Awareness and You (Kate Frantz)
11:40 am Stress and Autoimmunity (Firdaus Dhabhar)
12:30 pm Afternoon Overview and Instructions (Sahana Vyas and Marc Yale)
12:30 pm Attendees on their own / Speaker Open Discussions
5:30 pm – 10:30 pm IPPF 20th Anniversary Gala Celebration
5:30 pm – 6:00 pm Cocktail Reception
6:00 pm – 7:00 pm Dinner
7:00 pm – 7:10 pm Congressman Danny Davis Keynote (Sahana Vyas)
7:10 pm – 7:15 pm Recognizing 20 Years (Grant Anhalt)
7:15 pm – 7:20 pm TBD
7:25 pm – 7:30 pm Founder’s Award Presentation (Zrnchik/Segall)
7:30 pm – 10:00 pm Casino Night and Live DJ
10:00 pm Chip Counts and Prize Selections
10:30 pm Evening Ends

Sunday, April 27, 2014

8:00 am Morning Beverage Service
8:00 am Welcome Back and Workshop How-To (Sahana Vyas and Marc Yale)
8:05 am Patient Panel Discussion (PHCs, invited patients)
8:35 am IPPF and You (Badri Rengarajan and Will Zrnchik)
9:00 am – 11:20 am SESSION IV – WORKSHOPS (snacks/beverages available)
Workshops running concurrently; attendees SELECT ONE WORKSHOP FOR EACH BLOCK Each workshop is 40 minutes with 10 minutes between. Formats may vary (10 minutes presentation, 30 minutes Q&A; 10 minutes presentation, 20 minutes practical application, 10 minutes Q&A; 20 minutes presentation, 20 minutes Q&A; Group Discussion)
9:00 am – 9:40 am Block I

  • Diet and Nutrition (Vicky Starr)
  • Reducing Stress through Meditation (Mei Ling Moore)
  • IVIg Insurance and Reimbursement Issues (KabaFusion)
  • Caregivers and Family (Scott Oling)
9:50 am – 10:30 am Block II

  • Diet and Nutrition (Vicky Starr)
  • Oral Care and Hygiene (Sandra Boody)
  • The Science of Pemphigus at the Cellular Level (Ani Sinha)
  • P/P Awareness Focus Group (Kate Frantz)
10:40 am – 11:20 am Block III

  • Pemphigus & Pemphigoid Below the Belt (Razzaque Ahmed)
  • Ocular Concerns and Care in P/P (Ali Djalilian)
  • Reducing Stress through Hypnotherapy (Janet Segall)
  • Insurance and Reimbursement Issues (Walgreens)
11:30 am – 12:45 pm SESSION V – Ask the Experts (Moderator: Sergei Grando)
11:30 am – 12:00 pm Q&A (presubmitted questions)
12:00 pm – 12:45 pm Q&A (open mic)
12:50 pm Closing Remarks

 

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About IPPF

The International Pemphigus & Pemphigoid Foundation’s most important objectives are to provide patients and doctors worldwide with information about pemphigus and pemphigoid, and to provide patients and their caregivers much needed comfort and support so they can continue to live active, productive lives.
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International Pemphigus & Pemphigoid Foundation
1331 Garden Highway, Ste 100
Sacramento, CA 95833
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info@pemphigus.org
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(916) 922-1298

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