Does this sound like you or someone you know?
For more than 20 years, the IPPF has led the way in voicing the needs of the pemphigus and pemphigoid community. Since 2012, we have been increasingly active as a Foundation, and as members of larger coalitions. Together, we are driving favorable policies, advancing medical research, and providing patient services for those affected by pemphigus and pemphigoid. The IPPF works closely with our like-minded advocacy partners on the federal and state level to inspire policies supportive of the needs of P/P and other rare disease patients and their families.
Alone we can do so little; together we can do so much.
Ways to Self-Advocate
Facing up hill battles for diagnosis or treatment? You are not alone. Better yet, you can start to take that power away from the “no” sayer” and use it to your advantage – as a Patient Self-Advocate.
IPPF Self-Advocates In Action!
Meeting with staff members and elected officials on P/P favorable legislation.
Led by Marc Yale with the help of members from our Board, staff, and volunteers, our Self-Advocates “humanize” P/P to those who need to know our stories, our challenges, or needs.