No disease is too rare for a cure.
The IPPF supports many other organizations along their journey for favorable legislation. While we may not have a direct connection to their cause, the underpinnings of their goal is the same as ours: improve the quality of life for their patients.
Therefore, many organizations support us, and we support them. This puts every organization’s name in front of hundreds of committee staffers, aides, and leaders. In our beginnings, and renewed in recent years, the IPPF has become more active in what therapies are in development and who is the lead investigator. In some instances the IPPF is consulted with to speak on both the scientific and human interest protocols. *
*Of course we ask our medical advisors to answer the tough questions.