The IPPF is reviving support in the San Francisco Bay Area! This is a FREE event and patients, caregivers, and interested individuals are encouraged to attend. IPPF MAB member Dr. M. Peter Marinkovich (Stanford University) and SF Support Group leader…
Blog Archives
Have YOU Heard About ST18?
The recent buzz in the pemphigus and pemphigoid community stems from the publication of “Population-Specific Association between a Polymorphic Variant in ST18, Encoding a Pro-Apoptotic Molecule, and Pemphigus Vulgaris” in the Journal of Investigative Dermatology (available online, March 2012). Despite…
Tagged with: jewish, pemphigus vulgaris, pv, sprecher, st18
Posted in Clinical Research, News and Information
Posted in Clinical Research, News and Information
Tools and Tips
What you need to know about living with P/P
The Beast Battle
by Svoboda M. Holt, M.S. LMHC, NCC "I Have What!" It all started with a simple flake on the back of my head. I remember it well. I was sitting on my couch when I reached up and came away…
Posted in Around the Globe
ELISA – Peace of Mind by the Numbers
by Kirsten R Bellur It is almost four years ago that, after many failed attempts, I was finally accurately diagnosed with Pemphigus. In the face of that solemn pronouncement, I was told there was good news: it was only Foliaceous,…
Results of Survey on Drugs Used to Treat Pemphigus
By Rebecca Berman, Janet Segall and Jean-Claude Bystryn, M.D. from The National Pemphigus Foundation and The Ronald O. Perelman Department of Dermatology, New York University School of Medicine, New York, NY. February 17, 1999 As many of you know, we…
Tagged with: antiinflammatory, effectiveness, intralesional, methotrexate, perspectives
Posted in Medical
Posted in Medical
Medical privacy, access to records often at odds
In a world of paper records, consumers have long been vulnerable to someone’s snooping around an unattended file drawer. Such thefts were rare but could be pulled off without detection.
Posted in Around the Globe
GSK, Pfizer pay U.S. doctors $262M
Following up Merck’s doctor-payment disclosures, Pfizer and GlaxoSmithKline posted their numbers. And perhaps befitting to the world’s largest drugmaker, Pfizer spent the most: $177 million was doled out to doctors in support for clinical trials and speaking fees. GSK’s payments…
Posted in Around the Globe
Web Communities Help Patients With Rare Diseases
Finding health information can be hard if you have a rare disease. Those patients often have to become experts themselves. Social media like Facebook make it easier for people with rare disorders to find each other and share that expertise.…
Posted in Around the Globe
