Author Archives - webadmin

Missing Out On “Free” Money?

29 Mar 2016 (PemPress & PemPress Foundation)

Over $10 billion in employer matching donations go unclaimed each year. The IPPF donation page allows you to search and see if your employer has a matching donation program.

The Rarest Day of Them All

Monday, February 29, 2016, was “Leap Day,” the rarest day of the year. But for the rare disease community, it was much, much more: it was International Rare Disease Day.

Raising Pemphigus and Pemphigoid Awareness

04 Feb 2016 (PemPress & PemPress Awareness & PemPress Foundation)

On the last day of February millions of people around the world will observe Rare Disease Day. Get involved by visiting the U.S. (www.rarediseaseday.us) or global (www.rarediseaseday.org) Rare Disease Day website before February 29 to learn about events in your area and what you can do.

Happy Holidays!

09 Dec 2015 (PemPress & PemPress Foundation)

As the holidays approach and 2015 draws to a close, the International Pemphigus and Pemphigoid Foundation has much to reflect upon — and even more for which to be grateful!

What is #GivingTuesday?

10 Nov 2015 (PemPress & PemPress Foundation)

Tuesday, December 1, 2015, is #GivingTuesday, a day the world will come together to support nonprofit organizations and their missions. #GivingTuesday has raised more than $80 million since it began in 2012, and this year the IPPF is participating.

Welcome to PemPress

13 Oct 2015 (PemPress & PemPress Foundation)

The IPPF has maintained a “News and Information” section for many years. The launch of PemPress signals a new era in how we share information with our community. Our overarching goal is to increase public knowledge of the IPPF and our programs and services while providing P/P patients with information that improves their quality of life.

FROM THE TOP

16 Sep 2015 (Issue 76 - Spring 2014)

Can you believe it’s already March? I can’t! Rare Disease Day came and went, Autoimmune Disease Awareness Month is upon us (see page 13 for a special offer), and the Patient Conference is nearly upon us! If you ever wanted to attend — this is the year! Chicago? Need I say more! New to the Office. I’d like to welcome…

What Does the IPPF Mean to YOU?

16 Sep 2015 (Issue 71 - Winter 2012)

To Anna, the IPPF means hope when all hope was gone. For Steve, the IPPF means discovering hundreds of other patients when he thought he was alone. And Jack — Jack says he owes the IPPF his life. To me, the IPPF means helping my ‘pem-family’ find comfort, strength, and support through our dedicated staff and volunteers. Phone calls and…

From the Top

16 Sep 2015 (Issue 71 - Winter 2012)

‘Tis the season for giving thanks and celebrating the holidays with those we love. Things can become so hectic that we forget to thank those around us for being a part of our lives. Personally, I am thankful for my parents and their advice over the years. “Bird” and “Pops,” as they are affectionately referred to, were never short on…

Recently Diagnosed?

16 Sep 2015 (Issue 66 - Fall 2011)

Our Director of Communications, Will Zrnchik, created this great new logo to identify the relationship between the KJT Group (a professional, medical, research firm and the IPPF on a project currently undertaken by the IPPF Board of Directors and IPPF Medical Advisory Board) and the IPPF to accurately and scientifically document the pathway(s) to an accurate diagnosis of pemphigus or…

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