Author Archives - webadmin

From the Top

01 Jun 2014 (Blog & Issue 77 - Summer 2014)

William Zrnchik, MBA, MNM IPPF Chief Executive Officer will@pemphigus.org CHICAGO WAS A BLAST! I want to thank everyone who made it a success! The support from our sponsors, conference committee, staff and volunteers was tremendous! If you missed it, information is available on our website, www.pemphigus.org, or you can email Noelle Madsen at noelle@pemphigus.org and she will help you find…

Depression in patients with pemphigus: Is it a major concern?

23 May 2014 (Around the Globe & Isuue 76 - Spring 2014 & News and Information)

It is suggested that some dermatological diseases due to their chronicity, impact on the body image, unlikelihood of complete recovery and frequent recurrences are one of the major predisposing factors towards depression. Therefore, we aimed to evaluate the rate and level of depression among pemphigus vulgaris and pemphigus foliaceus patients, two of the most common causes of hospitalization in dermatology…

2014 Patient Conference Stream

22 Apr 2014 (Around the Globe)

Saturday Stream

2014 Patient Conference Chicago IL

22 Apr 2014 (Around the Globe)

We are experiencing some web difficulties. We apologize for any inconvenience. Conference Materials Conference video footage (unedited) Theconference stream uses LiveStream services. Friday, April 25, 2014 3:00 pm Registration Opens 4:00 pm Welcome, Opening Remarks and Weekend Overview (Sahana Vyas and Will Zrnchik) 4:15 pm – 6:00 pm SESSION I – INTRODUCTION TO P/P 4:15 pm Pemphigus: Disease Classification &…

From the Top

01 Dec 2013 (Blog & Issue 75 - Winter 2013)

Season’s Greetings! It’s that time of the year again and here at the office we are getting ready for 2014. But we still have another month to go, and that means finishing up 2013 with a bang! Kate Frantz is settling in and getting the Awareness Campaign up and running; Monique Rivera has been busy processing donations and keeping the…

The Power of Giving Back

01 Sep 2013 (Issue 74 - Fall 2012)

The IPPF is looking for volunteers to help us with many of our education and support projects and programs, including in several newly-created roles. The three main types of positions we are looking to fill are Executive Board (CEO’s senior staff), Special Projects Contributors, and General Volunteers. The Executive Board heads up a “department” or initiative under the CEO. This…

From the Top

01 Sep 2013 (Issue 74 - Fall 2012)

Summer is drawing to an end, kids are back in school, and the IPPF is preparing for our end-of-year activities. I want to thank everyone help us carry our mission to the four corners of the globe. Volunteers are becoming more and more important in our daily operations, and every bit counts. Helping us in the office will be not…

From the Top

01 Jun 2013 (Issue 73 - Summer 2013)

Summer has always meant a lot to me. When I a kid I played Little League baseball on the southern shores of Lake Michigan. One year, our team was a solid 0-10 (no wins, 10 losses). It was July 1 and it was my birthday. I was officially 11 and we were about to officially be 0-11. We were terrible!…

From the Top

01 Mar 2013 (Issue 72 - Spring 2013)

Spring is in the air and the IPPF is busy planting the seeds of initiatives and enhancements to benefit patients everywhere. Awareness is a big part of what the IPPF does. The more people know about our diseases, the more people can do about it. On February 28, 2013, the IPPF led a group of six rare disease organizations in…

September 2012 SF Bay Area Support Group Meeting Announced!

09 Aug 2012 (Caregiving & Health and Lifestyle & Health Management & Support)

The IPPF is reviving support in the San Francisco Bay Area! This is a FREE event and patients, caregivers, and interested individuals are encouraged to attend. IPPF MAB member Dr. M. Peter Marinkovich (Stanford University) and SF Support Group leader Prem Jain invite you to join them at Stanford Medical Outpatient Center. WHEN: Saturday September 29, 2012 from 11am –…

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