Patient Educators

To increase retention of PV/MMP curriculum, IPPF Patient Educators will visit a minimum of 19 U.S. dental schools to provide an emotional appeal to students. Patient Educators share their diagnosis story with dental students. The lecture begins with a five-minute video on PV/MMP, followed by a 45-minute Patient Educator presentation and a 15-minute Q&A session.

Read about Dr. Paul Edward’s experience with an IPPF Patient Educator presenting to his second year Oral Pathology dental students at Indiana University School of Dentistry.

Read about dental student Tim Treat’s experience  with an IPPF Patient Educator presenting to his class at Indiana University School of Dentistry.

This article published in the Journal of Dental Education highlights the impact of patient education presentations, as well as the importance of learning about rare conditions.

IPPF Patient Educators in Action

Highlights of recent dental school presentations.

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She is a face to the disease. Learned more today than any regular lecture.
-Dental student
2015-08-11T21:58:41+00:00
She is a face to the disease. Learned more today than any regular lecture. -Dental student
Thank you very much for reaching out to Temple and for sponsoring Hannah—what a valuable addition to the curriculum for us! Students will remember Hannah and her message.
-Maria Fornatora, DMD
Associate Dean for Academic Affairs, Temple University Kornberg School of Dentistry
2015-08-12T19:31:45+00:00
Thank you very much for reaching out to Temple and for sponsoring Hannah—what a valuable addition to the curriculum for us! Students will remember Hannah and her message. -Maria Fornatora, DMD Associate Dean for Academic Affairs, Temple University Kornberg School of Dentistry
It will help me be more compassionate toward my patients.
-Dental student
2015-08-11T22:02:38+00:00
It will help me be more compassionate toward my patients. -Dental student
I am very fortunate to have been able to provide my students with this type of experience. I strongly encourage every dental school to consider inviting an IPPF Patient Educator into their classroom.
-Paul C. Edwards, MSc, DDS, FRCD(C)
Professor, Dept of Oral Pathology, Medicine, and Radiology, Indiana University School of Dentistry
2015-08-12T19:30:40+00:00
I am very fortunate to have been able to provide my students with this type of experience. I strongly encourage every dental school to consider inviting an IPPF Patient Educator into their classroom. -Paul C. Edwards, MSc, DDS, FRCD(C) Professor, Dept of Oral Pathology, Medicine, and Radiology, Indiana University School of Dentistry
It made it real instead of words on a page or PowerPoint.
-Dental student
2015-08-11T22:02:01+00:00
It made it real instead of words on a page or PowerPoint. -Dental student
She was a smashing hit with our dental students! The reviews were phenomenally positive! I want to invite her again to share her story this coming fall.
-Dr. Alfredo Aguirre, D.D.S., M.S.
2016-03-23T18:24:54+00:00
She was a smashing hit with our dental students! The reviews were phenomenally positive! I want to invite her again to share her story this coming fall. -Dr. Alfredo Aguirre, D.D.S., M.S.
Students really enjoyed the experience and commented on how interesting and helpful it was to combine the patient educator presentation with a regular lecture.
-Bruno Jham, DDS, MS, PhD
Assistant Dean for Academic Affairs
College of Dental Medicine Illinois
Midwestern University
2015-08-11T22:03:53+00:00
Students really enjoyed the experience and commented on how interesting and helpful it was to combine the patient educator presentation with a regular lecture. -Bruno Jham, DDS, MS, PhD Assistant Dean for Academic Affairs College of Dental Medicine Illinois Midwestern University
In 47 years teaching dental students, I can't recall students giving a lecturer such rapt attention. They asked so many questions that we ran out of formal lecture time and several students followed her into the corridor.
-Lawrence Schneider, BDS, PHD
Rutgers School of Dental Medicine
2016-02-24T00:13:18+00:00
In 47 years teaching dental students, I can't recall students giving a lecturer such rapt attention. They asked so many questions that we ran out of formal lecture time and several students followed her into the corridor. -Lawrence Schneider, BDS, PHD Rutgers School of Dental Medicine
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A Patient’s Journey Toward A Pemphigus Vulgaris Diagnosis

Watch Becky Strong’s emotional journey toward a pemphigus vulgaris diagnosis. This honest portrayal of a patient’s search for answers emphasizes the importance of the IPPF Awareness Campaign. Unfortunately many patients with PV/MMP share Becky’s experience. The Awareness Campaign strives to change this so future patients can instead describe a story of early diagnosis.

To view additional resources and supplemental curriculum, visit the Awareness Campaign’s resource page.

The IPPF is working to secure presentations at U.S. dental schools. For dental schools interested in hosting a Patient Educator, email awareness@pemphigus.org

Participating Schools

IPPF Patient Educators have presented guest lectures at the following schools. Thank you for making this experience available to your students!

Boston University

Loma Linda University

Midwestern University, Illinois

New York University

Rutgers University

Tufts University

University of Michigan

University of Missouri, Kansas City

University of Pennsylvania

Virginia Commonwealth University