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Blog Archives

Upcoming PEM Friends Meetings

Friday, 10 October 2008, PEM Friends will meet at 12.30pm for an informal lunch on the 6th floor of Peter Jones, Sloane Square, London. We’ll be Today idea is larger one any the again work to been this nose

Posted in Issue 54 - Fall 2008

Away Weekend Enjoyable and of Great Value

PEM Friends, the UK wing of the IPPF, held their annual get-together at Carolyn and Raymond Blain’s estate Westerhill, near Ashton-under-Lyne, Greater Manchester, England, over the weekend of the 27-29 June 2008.

Posted in Issue 54 - Fall 2008

Misdiagnosis: More Reason for Increased Advocacy & Awareness

Because pemphigus and pemphigoid are such rare diseases, one of the biggest problems in achieveing successful treatment is misdiagnosis. Misdiagnosis is considered to be the most common cause of patient safety issues. Delays in treatment and malpractice suits are noted

Posted in Issue 54 - Fall 2008

IPPF Earns 4 MarCom Awards!

The IPPF recently was recognized by the Association of Marketing and Communications Professionals with FOUR awards! The MarCom Awards signify excellence in marketing and communications projects such as print, online, and video. GOLD AWARDDesign/Website – community.pemphigus.orgENewsletter – The Quarterly HONORABLE

Posted in Issue 54 - Fall 2008

PEM Friends Continues to Support and Educate Patients

On Friday the 10 October 2008, we met for an informal and very leisurely lunch. It was in our usual London venue, i.e. the far right hand corner of the self-service restaurant on the 6th floor of Peter Jones, Sloane

Posted in Issue 54 - Fall 2008

Dutch Netwerk Gathers for Informal Meeting in Poeldijk

About once a year the Dutch Network for P&P organises a meeting for patients and their partners or caretakers. The last one was held 1 November 2008 at Poeldijk, the Netherlands. Eighteen people from all over the country were present.

Posted in Issue 54 - Fall 2008

Supporting Each Other and Planning the 2009 Annual Meeting

The LA Support Group got together on October 11, 2008, at the Westside Pavilion in Los Angeles, California. The Group was joined by UCLA’s Dr. Jennifer Haley and IPPF Founder and Director of Patients Services & Education, Janet Segall. The

Posted in Issue 54 - Fall 2008

New Organization Established in Canada to help Local Patients and their Families

I am delighted to inform you that there is now an organization in Canada to help patients and caregivers better cope with these diseases. The Canadian Pemphigus and Pemphigoid Foundation based in Ottawa, Ontario was incorporated as a not-for-profit organization

Posted in Issue 54 - Fall 2008

Ace Inhibitors and Pemphigus

A question that has been on the mind of many pemphigus/pemphigoid patients — and the subject of many discussions in the medical community — is regarding whether or not ACE inhibitors should be recommended to people with P/P disease if

Posted in Issue 54 - Fall 2008

Management of Pemphigus and Pemphigoid

Joint Meeting of the EADV Task Force on Autoimmune Bullous Diseases and the International Pemphigus & Pemphigoid Foundation During the last EADV congress held in Paris (September 17th to September 20th, 2008) the EADV task force for autoimmune blistering diseases

Posted in Issue 54 - Fall 2008


The P/P Registry has been approved by the Western Institutional Review Board (WIRB) and is actively enrolling participants.