Category Archives: Issue 57 – Summer 2009

The IPPF Annual Meeting provides a unique, quality opportunity for all who attend. While the IPPF has a website, discussion group, local support groups and quarterly newsletter, the in person face-to-face annual meetings continue to enable patients, caregivers and doctors in attendance to have cutting edge, educational and meaningful interactions.


When I was first diagnosed with PV 25 years ago, I had no one to talk with about my disease. There was no internet and I felt alone – that I was the only person in the world with PV. I was on my own looking for answers. Some of the questions I didn’t ask, and my doctor didn’t really know, were about immunosuppressive drugs.

Excluding the hosts, Raymond and Carolyn Blain, we already have the names of eight people who will be attending, so hurry towards a decision about joining us! These weekends are great fun, and of particular value to those experiencing a “bad time” with their pemphigus or pemphigoid, as well as some in remission who will also be able to empathize with you. At these occasions, remember you’ll be amongst friends who really do understand what you’re going through. I don’t think anyone has ever stayed for one of these weekends and not gone home feeling they’ve really benefited from the companionship, the fun we’ve all had and the very relaxing venue, which is in the countryside.
Please note that “carers” are particularly welcome, as they also find these weekends to be of great value and benefit.
Quite a number of friendships have developed too – another great benefit to come out of such events.
There are accommodations available at the main venue, The Stables ( and for those who’d prefer to be in a hotel, there’s the three star Best Western Smokies Park Hotel just a mile away.
If you’re interested in spending the weekend with us or just attending the Gala Dinner on Saturday evening, held in Raymond & Carolyn’s home, please do get in touch, and I’ll send further information.
Tel: 0161 343 7100/07831 349978 or