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Issue 58 – Fall 2009 | International Pemphigus Pemphigoid Foundation | Page 2
Blog Archives

View from the Top

This issue of the Quarterly focuses on our theme of Support. Support is one of the founding principles of the IPPF, stated in our Mission as: The IPPF provides direct access to innovative and effective support that: promotes the very

Posted in Issue 58 - Fall 2009

The View from Here

One of our volunteers soliciting gifts for our Annual Meeting auction mentioned to me that several of the places she has contacted asked the question, ?Does this disease affect kids?? When they asked her that question, she thought, ?Yes, of

Posted in Issue 58 - Fall 2009

New IPPF BOD Member Brings Vast Experience to the Mix

The IPPF is pleased to welcome the newest member to our Board of Directors. Mindy Unger is a mother of three children, ages 19, 16, and 9 and is actively engaged in a number of philanthropic activities. Mindy graduated from

Posted in Issue 58 - Fall 2009

Advances in Pemphigus Research

The IPPF has always been instrumental in supporting clinical and scientific meetings. In addition to supporting the American Academy of Dermatology’s (AAD) Symposium on Autoimmune Blistering Diseases, the IPPF is co-sponsoring the International Pemphigus Meeting in Bern, Switzerland in June

Posted in Issue 58 - Fall 2009

Raising Awareness in Boston: Yankee Dental Congress

Each year, the Massachusetts Dental Society, in cooperation with the dental societies of Connecticut, Maine, New Hampshire, Rhode Island, and Vermont, hosts the Yankee Dental Congress (YDC).

Posted in Issue 58 - Fall 2009

Talking With Others About Your Diagnosis

Painful and scary symptoms no one seems to be able to explain or understand; a diagnosis you have never heard of before; understanding the actual illness; treatment options  most of which have not been FDA approved or may be considered

Posted in Issue 58 - Fall 2009

Advocacy of the IPPF Through the National Health Council

A member of our Board of Directors and I attended the National Health Council’s (NHC) annual meeting February 11-13, 2009.The National Health Council sets operating Standards of Excellence for its members  such as the IPPF and over 50 of the

Posted in Issue 58 - Fall 2009

Making a Difference in the Lives of Canadians

The Canadian Pemphigus and Pemphigoid Foundation (CPPF) is committed to making a difference in the lives of Canadians both locally and nationally. At the local level, we are deeply committed to establishing and helping to sustain as many support groups

Posted in Issue 58 - Fall 2009

Supporting Fundraising/Supporting Awareness

When the economy was crashing, I held my first fundraiser/awareness gathering knowing that a majority of the invitees were retirees. I’d never done anything like this before, but people who know me know when I believe in something, I am clear

Posted in Issue 58 - Fall 2009

Get Ready for the PEM Friends’ Away Weekend

If you are interested in a relaxing weekend getaway, perhaps in the scenic Ashton-under-Lyne countryside, consider spending it with the PEM Friends (UK) June 27-28, 2009. Hosts Raymond and Carolyn open up their beautiful inn and stables to P/P patients

Posted in Issue 58 - Fall 2009
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The P/P Registry has been approved by the Western Institutional Review Board (WIRB) and is actively enrolling participants.

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