The International Pemphigus and Pemphigoid Foundation (IPPF) is pleased to announce the availability of a seed grant program to encourage and support patient-oriented research of pemphigus and pemphigoid. The intent of these grants is to support well-defined research projects that have a specified benefit for improving the treatment, health, disease management, or diagnosis of persons with pemphigus and pemphigoid. Consideration will also be given to studies that contribute to the body of medical knowledge of pemphigus and pemphigoid.
The IPPF appreciates the generosity of each and every dollar we receive, and we allocate donated funds in a responsible manner. After all, your generosity allows us to carry out our mission of improving the quality of life for all people affected by pemphigus and pemphigoid through early diagnosis and support.
This year’s conference promises to be one of our best yet as we are highlighting the most recent research advances in the fields of pemphigus and pemphigoid. Dr. Aimee Payne, a dermatologist at the University of Pennsylvania, will be our keynote speaker on Thursday night at the Annual Awards Dinner where she will share her perspective on pemphigus and pemphigoid research.
While working as a Peer Health Coach, I’ve had the pleasure of speaking with many P/P patients. Creating those relationships has been so gratifying. I have also built and expanded programs that serve our community, and I’ve represented the organization at conferences, meetings, and in the halls of Congress. So far, my time with the IPPF has been rewarding to say the least. This is why I was so honored when the IPPF Board of Directors asked me to lead our foundation as Interim Executive Director.
On the last day of February millions of people around the world will observe Rare Disease Day. Get involved by visiting the U.S. (www.rarediseaseday.us) or global (www.rarediseaseday.org) Rare Disease Day website before February 29 to learn about events in your area and what you can do.
Tuesday, December 1, 2015, is #GivingTuesday, a day the world will come together to support nonprofit organizations and their missions. #GivingTuesday has raised more than $80 million since it began in 2012, and this year the IPPF is participating.