Nancy Corinella, SG Coordinator
On May 17th the South Florida Support Group held their second meeting. We have grown from 5 attendees to 16. Among attendees, we had those who were recently diagnosed as well as those who have had pemphigus for up to 20 years. Everyone introduced themselves and spoke about their journey to proper diagnosis. We are a small community; there were two women who had known each other from a previous support group they had attended in New York, and they now live in the same community here in Florida!
Daphna Smolka spoke about the recent IPPF Conference in New York. She made everyone aware of the matching grant that is going on right now (to the tune of $100,000!) and also touched on the importance of participating in the blood study in progress at the laboratory of Dr. Animesh Sinha [Editor’s note: Please see related story, “Donating Blood for Research,” on page 14].
There was such camaraderie in the room. Everyone was sharing information on new treatments and doctors in the area. The meeting was a huge success, and everyone left looking forward to the next meeting. Each and every person felt that they had learned something new, or at the very least made a connection with someone who understood their experiences battling this disease. ippf