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Contact Us - Local Support Groups

The International Pemphigus & Pemphigoid Foundation has a network of support groups available to answer your questions and provide helpful and accurate information regarding pemphigus and pemphigoid. Please feel free to contact any of the people listed. Contact the Group Leader in your area today! If you do not find a support group in your area and would like to find out more information on starting one, contact our offices and someone will be glad to assist you.

Name Position Phone Fax
Canada - Victoria Carlan Support Group Leader
California (Northern) - Sarah McClellan IPPF Support Group Leader 916-684-0870
California (Southern) - Lynn Glick IPPF Support Group Leader 310-559-5462
Florida - Marcia Pepper IPPF Support Group Leader
Illinois - Mike Main IPPF Support Group Leader 630-452-4200
Indiana-Michigan - Sonja Matheny IPPF Support Group Leader 574-286-8540
Massachusetts - Alan Papert IPPF Support Group Leader 978-463-0965
Nevada (Las Vegas) - Cherie Jacobson IPPF Support Group Leader 702-456-0150
New York - Matt Koenig IPPF Support Group Leader 516-825-4594
Pennsylvania (Pittsburgh) - Terry Wolinsky-McDonald, Ph.D.
South Carolina (Gray Court) - Cheryl Jordan IPPF Support Group Leader 864-876-1324
Texas (Dallas) - Joyce Korn IPPF Support Group Leader 214-739-1485
France - Josée de Felice IPPF Support Group Leader 01 60 72 18 73
France - Isabelle Gentile Treasurer, Association Pemphigus France 02 23 96 39 21
Italy (Rome) - Anna Lisa Riccardi IPPF Support Group Leader
Israel (Tel Aviv) - Gilad Peleg IPPF Support Group Leader 03-9072917
Netherlands - Hermien Konings IPPF Support Group Leader
Philippines - Dr. Benjamin Bince Jose Reyes Memorial Medical Center +632-711-6703
UK - Carolyn Blain (PEMFriends) IPPF Support Group Leader 0161 343 7100
UK - Pemphigus Vulgaris Network IPPF Support Group Leader
 
  • Information and Questions   (4)

    These contact links are available to help you get IPPF information, request a doctor referral, and other administrative concerns or feel free to contact us via postal mail at:

    International Pemphigus & Pemphigoid Foundation
    1540 River Park Drive, Suite 208
    Sacramento CA 95815
    United States of America
    (916) 922-1298  |  fax (916) 922-1458

  • Support Groups   (20)
  • United States Heart2Heart   (56)

    This lising is of United States volunteers only. These Heart2Heart volunteers are available to talk with you and are happy to hear from anyone who needs help. Volunteers are here to help with advice, doctor recommendations in your area, etc. Having lived with pemphigus or pemphigoid themselves, they will offer encouragement that you can beat this disease into remission (or at least stabilize it with minimal medication). Remember, they are here to offer hope when the going gets tough. If you don't see someone in your area, contact our office and we'll help you find someone who can help.

  • Worldwide Heart2Heart   (15)

    This lising includes all countries other than the United States. These Heart2Heart volunteers are available to talk with you and are happy to hear from anyone who needs help. Volunteers are here to help with advice, doctor recommendations in your area, etc. Having lived with pemphigus or pemphigoid themselves, they will offer encouragement that you can beat this disease into remission (or at least stabilize it with minimal medication). Remember, they are here to offer hope when the going gets tough. If you don't see someone in your area, contact our office and we'll help you find someone who can help.

IPPF Member Login

Newsflash
2007 Annual Meeting

(Excerpt from the Quarterly, Issue 50, Fall 2007) This year we celebrated the 10th anniversary of our Annual Patient/Doctor meetings in Toronto, Ontario, Canada. By holding this year’s meeting in Canada, we were looking to give our partners outside the U.S. an opportunity to experience the expertise and camaraderie that our meetings offer.

Read more...
 

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1540 River Park Drive Suite 208 | Sacramento CA 95815 | United States of America | (916) 922-1298 | fax: (916) 922-1458
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