A federal judge on Monday struck down patents on two genes linked to breast and ovarian cancer. The decision, if upheld, could throw into doubt the patents covering thousands of human genes and reshape the law of intellectual property
Monatsarchive: March 2010
Social Networks a Lifeline for the Chronically Ill
A former model who is now chronically ill and struggles just to shower says the people she has met online have become her family. A quadriplegic man uses the Web to share tips on which places have the best wheelchair…
Veröffentlicht unter Around the Globe
PV Patient tells of her “Roller Coaster Ride with Pemphigus” in Derm PA Journal
One of the most challenging tasks the IPPF (and all rare-disease organizations) faces is addressing the issue of mis-diagnosis — how to educate and inform over 8,000 dermatologists in the United States alone, the vast majority of whom will…
Veröffentlicht unter Issue 60 - Spring 2010
From the Top
As you read this issue I’m sure that you will be as amazed as I am about all the ways that members of the community reach out to serve others. This is the Support Issue, our time to highlight, thank…
Veröffentlicht unter Issue 60 - Spring 2010
Validation of the Human Need for Support
Part of the training in most psychology doctoral programs involves going through your own personal therapy or analysis. There are two main reasons for this: 1) It is important for psychologists to truly understand themselves in every way, especially to…
Veröffentlicht unter Issue 60 - Spring 2010
Sharing Your Data; Giving the Gift of a Better Life
If anyone would have told me four years ago that I would be writing this narrative, I would not have believed them. My name is Susan Gonzales and I was diagnosed with pemphigus vulgaris (PV) in February of 2006.…
Veröffentlicht unter Issue 60 - Spring 2010
Peer Health Coaches: Trained and Inspired to Make a Difference in the Lives of Others
After being diagnosed in August 2007 with Bullous Pemphigoid (BP), I wondered what I could do to help others who were suffering with this disease. I felt that there had to be something that I could do to help. I…
Veröffentlicht unter Issue 60 - Spring 2010
Annual Meeting Offers More Than You’d Expect
Most people first come to the Annual Meeting when they are in the worst throes or the early stages of these diseases, in pain, angry, alone and uncertain. Most leave having met many, many folks who are in “remission,” that…
Veröffentlicht unter Issue 60 - Spring 2010
Numbers Don’t Lie
The IPPF continues to grow and reach out to new members world-wide. Our Community Forums include areas for pemphigus, pemphigoid, pets, people under 30, Spanish speakers, and more! Our Facebook page has almost 150 fans! Search for us (International Pemphigus…
Veröffentlicht unter Issue 60 - Spring 2010
Law Dictates Who Decides on Care for the Incapable
It is one of those medical quandaries often faced by families dealing with older and dying parents: Who makes decisions for patients who cannot make their own and have not left written instructions?
Veröffentlicht unter Around the Globe
