On March 28, 2012 in partnership with the National Coalition of Autoimmune Patient Groups (NCAPG), the IPPF co-sponsored a congressional briefing titled, “The Multi-Generational Impact of Autoimmune Disease: America’s Silent Health Crisis” featuring experts on the subject. The IPPF is pleased…
Monatsarchive: June 2012
NCAPG, AARDA working on Autoimmune Committee Bill
Getagged mit: aarda, autoimmune, buerkle, congress, house, ncapg
Veröffentlicht unter News and Information
Veröffentlicht unter News and Information
Say No and Know Your Limits
When taking care of a patient or loved one, a caregiver has to change their schedule to accommodate the tasks of caring. This change may affect the caregiver’s free time and they might have to learn to say “no” more…
Getagged mit: caregiver, no, schedule, stress, support, time management, tips
Veröffentlicht unter Caregiving
Veröffentlicht unter Caregiving
“Coaches Corner” – Vitamins and Minerals
People with chronic health conditions like Pemphigus and Pemphigoid are more likely to have vitamin and mineral deficiencies. This deficiency can be from the disease itself, the regimen of medications that you are on or even from the change in…
A long–term study of a patient with anti-p200 pemphigoid – correlation of autoantibody levels with disease activity and an example of epitope spreading
Anti-p200 pemphigoid is a rare subepidermal blistering disease associated with autoantibodies against a 200kDa protein, reportedly corresponding to laminin γ1. However, direct evidence of the pathogenic potential of these antibodies is missing. We have followed up a patient with anti-p200…
Getagged mit: autoantibody, disease, medical research, pemphigoid
Veröffentlicht unter Around the Globe, Clinical Research
Veröffentlicht unter Around the Globe, Clinical Research
Efficacy and safety of rituximab in pemphigus: experience of the German Registry of Autoimmune Diseases
Rituximab has been reported to be effective in various small case series of patients with severe and/or refractory pemphigus. However, no systematic evaluation is available to corroborate this observation. The aim of this study was to systematically determine efficacy and…
Getagged mit: data, registry, rituximab
Veröffentlicht unter Around the Globe, P-P Patient Registry, Registry-based Research
Veröffentlicht unter Around the Globe, P-P Patient Registry, Registry-based Research
Immunoadsorption in Dermatology
Immunoadsorption (IA) has been successfully used in a large variety of autoantibody-mediated disorders. In dermatology, IA is increasingly applied as adjuvant treatment for severe and/or refractory autoimmune bullous diseases. These disorders are characterized by autoantibodies against structural proteins of the…
