September 2012 SF Bay Area Support Group Meeting Announced!

The IPPF is reviving support in the San Francisco Bay Area! This is a FREE event and patients, caregivers, and interested individuals are encouraged to attend. IPPF MAB member Dr. M. Peter Marinkovich (Stanford University) and SF Support Group leader

Veröffentlicht unter Caregiving, Health and Lifestyle, Health Management, Support

Have YOU Heard About ST18?

The recent buzz in the pemphigus and pemphigoid community stems from the publication ofPopulation-Specific Association between a Polymorphic Variant in ST18, Encoding a Pro-Apoptotic Molecule, and Pemphigus Vulgarisin the Journal of Investigative Dermatology (available online, March 2012). Despite

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Veröffentlicht unter Clinical Research, News and Information

Tools and Tips


What you need to know about living with P/P

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Veröffentlicht unter Programs

Support is closer than you think

Featured Life ring

Looking for….

Veröffentlicht unter Programs

The Beast Battle

by Svoboda M. Holt, M.S. LMHC, NCC "I Have What!" It all started with a simple flake on the back of my head. I remember it well. I was sitting on my couch when I reached up and came away

Veröffentlicht unter Around the Globe

ELISAPeace of Mind by the Numbers

by Kirsten R Bellur It is almost four years ago that, after many failed attempts, I was finally accurately diagnosed with Pemphigus. In the face of that solemn pronouncement, I was told there was good news: it was only Foliaceous,

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Veröffentlicht unter Health and Lifestyle

Results of Survey on Drugs Used to Treat Pemphigus

By Rebecca Berman, Janet Segall and Jean-Claude Bystryn, M.D. from The National Pemphigus Foundation and The Ronald O. Perelman Department of Dermatology, New York University School of Medicine, New York, NY. February 17, 1999 As many of you know, we

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Veröffentlicht unter Medical

Medical privacy, access to records often at odds

In a world of paper records, consumers have long been vulnerable to someone’s snooping around an unattended file drawer. Such thefts were rare but could be pulled off without detection.

Veröffentlicht unter Around the Globe

GSK, Pfizer pay U.S. doctors $262M

Following up Merck’s doctor-payment disclosures, Pfizer and GlaxoSmithKline posted their numbers. And perhaps befitting to the world’s largest drugmaker, Pfizer spent the most: $177 million was doled out to doctors in support for clinical trials and speaking fees. GSK’s payments

Veröffentlicht unter Around the Globe

Web Communities Help Patients With Rare Diseases

Finding health information can be hard if you have a rare disease. Those patients often have to become experts themselves. Social media like Facebook make it easier for people with rare disorders to find each other and share that expertise.

Veröffentlicht unter Around the Globe
The P/P Registry has been approved by the Western Institutional Review Board (WIRB) and is actively enrolling participants.