The IPPF Annual Meeting provides a unique, quality opportunity for all who attend. While the IPPF has a website, discussion group, local support groups and quarterly newsletter, the in person face-to-face annual meetings continue to enable patients, caregivers and doctors…

It has been so much fun putting this newsletter together, it feels like looking through all the photos right after a wedding and remembering all the hilarious and bittersweet moments, all of the gifts and all of the challenges, the…

When I was first diagnosed with PV 25 years ago, I had no one to talk with about my disease. There was no internet and I felt alone – that I was the only person in the world with…

A large hall was allocated for the session, which was open to any registrant without an additional fee, and was full for most of the session, with about 300 dermatologists in the room.

It was a pleasure to attend this year’s annual IPPF meeting in Los Angeles.

The IPPF Leadership was awarded one of only four scholarships to participate in a pilot program launched by the American Academy of Immunologists

Right now, as many of you know, once you’ve been approved for disability most cases take 24 months before you can be approved for Medicare.

The first Patient/Doctor Meeting was held in Italy on May 18, 2009 in the IDI Dermatological Hospital, Rome.

Excluding the hosts, Raymond and Carolyn Blain, we already have the names of eight people who will be attending, so hurry towards a decision about joining us! These weekends are great fun, and of particular value to those experiencing a…

For the first time since our group started meeting two or three times a year for lunch, on the 20 February 2009 we held a lunch outside London.