IPPF eQuarterly

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IPPF

The Quarterly is published four times a year in the Spring, Summer, Fall and Winter. The material presented in our journal is not intended as medical advice. Readers are urged to consult their physicians before making any changes in their health regimen. The contents of the Quarterly cannot be reproduced or copied without written permission of the IPPF. The opinions of contributors are not necessarily those of the IPPF.

WinterWelcome to another exciting issue of the Quarterly -- online!

This issue is focused on progress.

Our cover story comes from Dr. Victoria Werth and Professor Deede Murrell on the progress made with diagnosis terminology in PV. Also, read more on increasing awareness, a new Canadian organization, and what happened when the IPPF Board of Directors met in New York.

FROM THE TOP...
Many Things to be Thankful For
I suppose that it's this time of year that can't help but make me reflective about all the things to be thankful for. But as they say, feeling gratitude and not expressing it is like wrapping a present and not giving it. So, here's my brief reflection on some of the many incalculable gifts that have...
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THE VIEW FROM HERE...
A New Hope for Healthcare
The election is over and congratulations to President-elect Barack Obama and all the local and State representatives. Everything that happens from now on not only depends on the President's abilities, but it also depends on our ability to do what we can. I know that one man cannot fix the world, and...
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INSIDE THIS ISSUE...
Cover Story...
Dare We Say Money Can Buy Progress
Beginning way back in 2005 the IPPF hosted an international scientific conference at the NIH (Nation...
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Community Relations...
Strengthening Community Relations: the IPPF Does its Part to Help Teens
We at the IPPF office in Sacramento are just delighted to introduce to you Carlos Sandoval (pictured...
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Working Together...
The Psychology of Giving
Is it better to have more things for ourselves or to do more for other people Is it better to measur...
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EADV Meets...
Management of Pemphigus and Pemphigoid
Joint Meeting of the EADV Task Force on Autoimmune Bullous Diseases and the International Pemphigus ...
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What YOU can do...
Improving Health Care Access Through Raising Awareness
I have been inspired to write this by two things which happened to me within the same week, and the ...
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IPPF BOD Meeting
Retreat to Advance
  When Dr. David Sirois, the IPPF's BOD President, first approached me about joining the Board of ...
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Be Prepared...
Ace Inhibitors and Pemphigus
A question that has been on the mind of many pemphigus/pemphigoid patients -- and the subject of man...
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Partnerships...
Partnering to Improve Diagnosis
Research shows nearly 15% of all diagnoses are inaccurate, and misdiagnosis is even more common in c...
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PEM Friends in Action...
PEM Friends Continues to Support and Educate Patients
On Friday the 10 October 2008, we met for an informal and very leisurely lunch. It was in our usual ...
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Dutch Support...
Dutch Netwerk Gathers for Informal Meeting in Poeldijk
About once a year the Dutch Network for P&P organises a meeting for patients and their partners or c...
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Oh Canada!
New Organization Established in Canada to help Local Patients and their Families
I am delighted to inform you that there is now an organization in Canada to help patients and caregi...
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IPPF Recognized...
IPPF Earns 4 MarCom Awards!
The IPPF recently was recognized by the Association of Marketing and Communications Professionals wi...
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Featured Article

Retreat to Advance

 

When Dr. David Sirois, the IPPF's BOD President, first approached me about joining the Board of Directors, I remember he had a needle in his hand and was about to shoot into a lesion in the back of my throat! It wasn't a time for me to question him. But, I was dubious unsure about what my role would be and how I might be able to contribute to the IPPF's mission.

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