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Issue 56 - Spring 2009
 A new year and a new issue of the Quarterly! Inside this SPECIAL SUPPORT ISSUE you can read about the support network Amanda used to help her cope, Alan and the Boston Support Group continue to raise awareness, and Dr. Terry McDonald has some tips on talking with others about your diagnosis. Also meet Mindy, our newest member of the Board of Directors, Dr. Bystryn tackles BP treatment, and much more!
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| Support... | View from the Top
This issue of the Quarterly focuses on our theme of Support. Support is one of the founding principles of the IPPF, stated in our Mission as: The IPPF provides direct access to innovative and effective support that:
- promotes the very best health care,
- improves quality of life,
- stimulates comm
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| Better Communications | The View from Here
One of our volunteers soliciting gifts for our Annual Meeting auction mentioned to me that several of the places she has contacted asked the question, ?Does this disease affect kids?? When they asked her that question, she thought, ?Yes, of course it affects kids.? She remembered how difficult it wa ...
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