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Issue 57 - Summer 2009
 This issue is the follow-up to our 2009 Annual Meeting in Los Angeles, CA! Read how the event unfolded from the views of some attendees; see pictures from the meeting, dinner, and auction; and share in the joy of being part of our Great Community! This issue is packed with pictures and information you won't want to miss!
   
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| Working Today for Tomorrow... | From the Top
It has been so much fun putting this newsletter together, it feels like looking through all the photos right after a wedding and remembering all the hilarious and bittersweet moments, all of the gifts and all of the challenges, the people who touch your life in ways that they will never know.
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| Helping Through the HMP... | The View from Here
When I was first diagnosed with PV 25 years ago, I had no one to talk with about my disease. There was no internet and I felt alone - that I was the only person in the world with PV. I was on my own looking for answers. Some of the questions I didn't ask, and my doctor didn't really know, were a ...
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