IPPF eQuarterly

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IPPF

The Quarterly is published four times a year in the Spring, Summer, Fall and Winter. The material presented in our journal is not intended as medical advice. Readers are urged to consult their physicians before making any changes in their health regimen. The contents of the Quarterly cannot be reproduced or copied without written permission of the IPPF. The opinions of contributors are not necessarily those of the IPPF.

Issue 58 - Fall 2009
Fall This issue highlights ADVOCACY and EDUCATION. The IPPF looks to our past and future as it honors Janet's selfless contributions and recaps the International Pemphigus Meeting in Switzerland. Read about Orphan Drug Act, coordinating care, RSS, and more!
From the Top
From the Top

What happened to the lazy days of summer! After slicing and drying almost 300 pounds of tomatoes from my garden, it is a happy frenzy when I get to the IPPF office – which is, at least, air conditioned. Will has been lifting the heavy weight of building an automated system that delivers our direct...
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INSIDE THIS ISSUE...
Leaping Forward!
International Pemphigus Meeting Held in Switzerland

Nestled in the pristine Swiss Alps, the Hotel Allegro in the city of Berne, Switzerland was the loca...
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Psychologically Speaking...
Coordination of Care

With Pemphigus and Pemphigoid (P/P) the “captain of the ship” regarding your care is usually a D
...
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What is on the Horizon...
Developing Products for Rare Diseases & Conditions

The Office of Orphan Products Development (OOPD) dedicates its mission to promoting the development
...
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Honoring Janet...
Faith, Vision, Sacrifice: Honoring IPPF Founder Janet D. Segall

Janet said, "I thought I would try to start the Foundation. Unfortunately, I was not prepared for th...
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Remembering...
A Look Back on the IPPF: Good Memories and Great Friendships

As a member of the IPPF BOD and one of Janet's longest standing supporters, I wanted to relect on wh

...

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More than Info...
It's More than Just Information: Working with the HMP's Marc Yale

Last year I signed up for the IPPF’s Health Management Program with the idea that I would benefit ...
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What is RSS?
What in the heck is this thing called RSS?

RSS stands for Really Simple Syndication. What it actually is can simplify the lives of the informat

...

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Featured Article

International Pemphigus Meeting Held in Switzerland

Nestled in the pristine Swiss Alps, the Hotel Allegro in the city of Berne, Switzerland was the location for an international meeting discussing all aspects of pemphigus. The meeting consisted of 3 days of intense scientific discussions. The meeting was co-sponsored by the IPPF and many members of the IPPF Medical Advisory Board were present. Included were Dr. Jean-Claude Bystryn, NYU Dermatology; Dr. Sergei Grando, UC Irvine; Drs. John Stanley and Victoria Werth, UPenn; Prof. Michael Hertl, Phillips Univ., Germany; Prof. Marcel Jonkman, Univ. of Groningen, Netherlands; Prof. Pascal Joly, Rouen Univ., France; Dr. Masa Amagai, Keio Univ., Japan; and Dr. Grant Anhalt, Johns Hopkins University. Ms. Janet Segall was there representing the patient's perspective and the IPPF.

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