Much has happened since our daughter, Amanda Staso, was featured in the Winter 2006 issue of the Quarterly. At that time, she was in eighth grade, and had just started treatment with Dr. Grant Anhalt after receiving a diagnosis of…

This issue of the Quarterly focuses on our theme of Support. Support is one of the founding principles of the IPPF, stated in our Mission as: The IPPF provides direct access to innovative and effective support that: promotes the very…

One of our volunteers soliciting gifts for our Annual Meeting auction mentioned to me that several of the places she has contacted asked the question, ?Does this disease affect kids?? When they asked her that question, she thought, ?Yes, of…

The IPPF is pleased to welcome the newest member to our Board of Directors. Mindy Unger is a mother of three children, ages 19, 16, and 9 and is actively engaged in a number of philanthropic activities. Mindy graduated from…

The IPPF has always been instrumental in supporting clinical and scientific meetings. In addition to supporting the American Academy of Dermatology’s (AAD) Symposium on Autoimmune Blistering Diseases, the IPPF is co-sponsoring the International Pemphigus Meeting in Bern, Switzerland in June…

Cada año, the Massachusetts Dental Society, in cooperation with the dental societies of Connecticut, Maine, New Hampshire, Rhode Island, and Vermont, hosts the Yankee Dental Congress (YDC).

Painful and scary symptoms no one seems to be able to explain or understand; a diagnosis you have never heard of before; understanding the actual illness; treatment options most of which have not been FDA approved or may be considered…

A member of our Board of Directors and I attended the National Health Council’s (NHC) annual meeting February 11-13, 2009.The National Health Council sets operating Standards of Excellence for its members such as the IPPF and over 50 of the…