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September 2012 SF Bay Area Support Group Meeting Announced!

The IPPF is reviving support in the San Francisco Bay Area! This is a FREE event and patients, cuidadores, and interested individuals are encouraged to attend. IPPF MAB member Dr. M. Peter Marinkovich (Stanford University) and SF Support Group leader

Publicado en: Cuidado, Salud y estilo de vida, Administración de la salud, Support

Have YOU Heard About ST18?

The recent buzz in the pemphigus and pemphigoid community stems from the publication ofPopulation-Specific Association between a Polymorphic Variant in ST18, Encoding a Pro-Apoptotic Molecule, and Pemphigus Vulgarisin the Journal of Investigative Dermatology (available online, March 2012). Despite

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Publicado en: Investigación clínica, Noticias e información

Herramientas y consejos


Lo que necesita saber acerca de la vida con P/P

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Publicado en: Programas

Apoyo está más cerca de lo que piensas

Featured Life ring


Publicado en: Programas

The Beast Battle

by Svoboda M. Holt, M.S. LMHC, NCC "I Have What!" It all started with a simple flake on the back of my head. I remember it well. I was sitting on my couch when I reached up and came away

Publicado en: Todo el mundo

ELISA – Peace of Mind by the Numbers

by Kirsten R Bellur It is almost four years ago that, after many failed attempts, I was finally accurately diagnosed with Pemphigus. In the face of that solemn pronouncement, I was told there was good news: it was only Foliaceous,

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Publicado en: Salud y estilo de vida

Results of Survey on Drugs Used to Treat Pemphigus

By Rebecca Berman, Janet Segall and Jean-Claude Bystryn, M.D. from The National Pemphigus Foundation and The Ronald O. Perelman Department of Dermatology, New York University School of Medicine, Nueva York, NY. February 17, 1999 As many of you know, we

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Publicado en: Médicos

Medical privacy, access to records often at odds

In a world of paper records, consumers have long been vulnerable to someone’s snooping around an unattended file drawer. Such thefts were rare but could be pulled off without detection.

Publicado en: Todo el mundo

GSK, Pfizer pay U.S. doctors $262M

Following up Merck’s doctor-payment disclosures, Pfizer and GlaxoSmithKline posted their numbers. And perhaps befitting to the world’s largest drugmaker, Pfizer spent the most: $177 million was doled out to doctors in support for clinical trials and speaking fees. GSK’s payments

Publicado en: Todo el mundo

Web Communities Help Patients With Rare Diseases

Finding health information can be hard if you have a rare disease. Those patients often have to become experts themselves. Social media like Facebook make it easier for people with rare disorders to find each other and share that expertise.

Publicado en: Todo el mundo
El registro de p y p ha sido aprobado por la Junta de revisión institucional de occidental (WIRB) y activamente es inscribir participantes.