The 2013 Patient Conference (formerly the IPPF Annual Meeting) will be held in San Francisco, California, April 26-28, 2013 at the Hilton San Francisco Airport Bayfront (Hilton SFO) in nearby Burlingame, ENTIDAD EMISORA DE CERTIFICADOS.

APRIL 26-28, 2013
Hilton SFO, Burlingame, ENTIDAD EMISORA DE CERTIFICADOS

Register for the Conference

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EARLY BIRD PRICING ENDS FEBRUARY 28, 2013 (that’s Rare Disease Day 2013!) Coming by yourself? Early Bird SINGLE $150 Coming with friends or family? Early Bird FAMILY just $100 each   Tickets include: Meeting materials, all sessions and workshops, Friday Night Welcome Reception, breakfast on Saturday and Sunday, Saturday Awards Luncheon, Saturday Evening Mixer, and all breaks Regular rates: Single $225, Family $200 each At the door: $300 per person

$129/night up to 3 people per room FREE In-Room Internet (normally $9.99/day) $8 daily Parking (normally $18/day) Complimentary Shuttle to/from SF Airport AND to/from city of Burlingame Click the Hilton logo above to Book Your Room OR call 650-340-8500 OR call Toll Free 800-HILTONS Group Code IPP Hotel Property Code: SFOAPHF Hilton San Francisco Airport Bayfront 600 Airport Blvd. Burlingame, California, USA 94010

Pemphigus and pemphigoid awareness and comprehension have unpredictable and unexpected impacts on the world’s health, especially for marginalized and vulnerable populations. Our independent research shows it takes an average of 5 physicians over 10 months to arrive at a correct diagnosis and begin treatment – and in some cases as many as 10 physicians.Ongoing research in such evolving challenges as inequitable social conditions, access to specialists, emerging and reemerging symptoms, psychological issues related to disease or treatment, and best practices is urgently needed to address these impacts. Moreover, innovative partnerships and coordinated responses from global health stakeholders such as multi-spectrum physician networks, academic institutions, and large-scale medical facilities will be necessary to tackle these issues. Against this background, our patient conference encourages experts in pemphigus and pemphigoid to openly discuss diagnosis, tratamiento, and lifestyle issues in a forum catering to patients and caregivers. This format promotes an increase in patient self-education and disease awareness that can be shared with their treatment and teams.

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The IPPF believes educated patients can make more informed decisions, with the guidance of their physicians, to improve their overall quality of life.

This two-day meeting focuses on the patient and will explore issues relevant to disease history and pathology, treatment options and side effects, lifestyle and psychological impacts, and wound care management. Sessions will be organized according to themes including pre-diagnosis, initial treatment, and living with the disease. Caregivers and family members are encouraged to attend and learn about disease-specific issues and how to work together as an informed support network.

Employing an array of activities including plenary lectures, workshops, and receptions and social events, participants ranging from patient and caregivers to students and practicing professionals will have the chance to exchange knowledge and ideas and work together to advance pemphigus and pemphigoid awareness and education at local, national, and global levels.

The conference will be an exciting and educational experience for all involved, from attendees to speakers to sponsors. By coming together in the San Francisco Bay Area to share our expertise and experiences, we will move closer to achieving the goal of an improved disease experience that is truly focused on the patient.

Schedule of Events

Friday, April 26, 2013

5:30 pm – 8:00 pm Early Registration and Welcome Reception

Saturday, April 27, 2013

7:00 am – 4:00 pm Registration/Information Table Open

7:00 am – 9:00 am Continental Breakfast

8:00 am Opening Remarks

8:15 am – 10:15 am Morning Sessions
Clinical overview of bullous skin diseases (Peter Marinkovich) 20min
Pemphigus (Grant Anhalt) 20min
Pemphigoid (Razzaque Ahmed) 20min
Diagnosis and Genetics (Ani Sinha) 20min
Oral aspects of bullous disease (Francina Nur) 20min
Ocular aspects of bullous disease (Christopher Ta) 20min

10:15 am AM Break

10:30 am – 11:30 pm Morning Sessions continued
GI aspects of bullous disease (Lauren Gerson) 20min
Genital manifestations of bullous disease (Johanna Badger) 20min
ENT aspects of bullous disease (TBD) 20min

11:30 am – 1:00 pm Plated Lunch, Guest Speaker (TBA), and IPPF Annual Awards

1:00 pm – 1:30 pm Stress and the Immune System (Firdaus Dabhaur) 30min

1:30 PM – 3:00 pm Workshops (20 minutes each, pick four from the list)
Side effects (Victoria Werth)
Insurance issues (Brian Cleary, Axelacare)
Oral Disease (Francina Nur)
Stress reduction (Janet Segall)
Genital Disease (Aruna Venkatasen)
Ocular Diseasae (Charles Lin)
Topical therapy (Peter Marinkovich)
*Psychological impact (Terry McDonald) ONLY TWO 20 MINUTE SESSIONS
*Pemphigoid (Marc Yale) ONLY ONE 20 MINUTE SESSION
*Pemphigus (Greg Wright) ONLY ONE 20 MINUTE SESSION

3:00 pm – 3:15 pm Break

3:15 PM – 3:30 pm The IPPF and You: future directions and volunteerism

3:30 PM – 5:00 pm Round table discussion of orphan drug development for bullous diseases
Badri Rengarajan: Moderator

5:00 pm – 7:00 pm Saturday Evening Mixer

Sunday, April 28, 2013

7:00 am – 10:00 am Registration/Information Table Open

7:00 am – 9:00 am Continental Breakfast

8:30 am – 10:15 am Morning Sessions
Overview of bullous disease therapy (Lawrence Chan) 25min
Steroids (Victoria Werth) 25min
Rituximab (Razzaque Ahmed) 25min
IgG and other steroid sparing agents (Sergei Grando) 25min

10:15 am AM Break

10:30 am – 12:00 pm Round Table discussion of practical approaches to therapy
Peter Marinkovich: Moderator
Panel: Grant Anhalt, Sergei Grando, Victoria Werth, Lawrence Chan

12:00 pm Closing Remarks

** Dates, times, and locations subject to change.