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Comunicados de prensa | International Pemphigus Pemphigoid Foundation

International Pemphigus & Pemphigoid Foundation Board of Directors Elects Dr. Badri Rengarajan as Board President

Sacramento, ENTIDAD EMISORA DE CERTIFICADOS (Enero 1, 2013) – The Board of Directors of the International Pemphigus & Pemphigoid Foundation (IPPF) elected Dr. Badri Rengarajan as President of the Foundation, effective immediately. Dr. Rengarajan works as a Medical Director at Archimedes, a healthcare

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International Pemphigus & Pemphigoid Foundation Moves Offices to Nonprofit Innovation Center

Sacramento, ENTIDAD EMISORA DE CERTIFICADOS (August 1, 2012) – The International Pemphigus & Pemphigoid Foundation (IPPF), the world’s largest pemphigus and pemphigoid patient and physician support organization located in Sacramento California, has announced an office relocation to the Sierra Health Foundation’s Nonprofit Innovation

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President Obama Signs FDA Safety and Innovation Act Bringing Hope to Rare Disease Patients

Sacramento, ENTIDAD EMISORA DE CERTIFICADOS (July 10, 2012)– Yesterday, July 9, 2012, President Obama signed the bipartisan Food and Drug Administration Safety and Innovation Act (FDASIA) into law giving hope to 30 million Americans suffering from rare diseases such as pemphigus and pemphigoid.

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International Pemphigus Pemphigoid Foundation (IPPF) Announces 15th Annual Meeting its Largest Ever

Sacramento, ENTIDAD EMISORA DE CERTIFICADOS (Mayo 4, 2012) – The International Pemphigus Pemphigoid Foundation (IPPF) has announced its 15th Annual Meeting in Boston, MA, is the largest in its 18-year history. “For an ultra orphan disease conference, our turnout is amazing! With nearly

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International Pemphigus Pemphigoid Foundation (IPPF) to Observe Rare Disease Day

The International Pemphigus Pemphigoid Foundation (IPPF) will join the National Organization for Rare Disorders (NORD) and others around the world in observing Rare Disease Day on February 29, 2012.

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Pemphigus & Pemphigoid Patient Registry Launched

The International Pemphigus & Pemphigoid Foundation (IPPF) has officially launched its Pemphigus-Pemphigoid Patient Registry. Pemphigus and pemphigoid (P-P) patients can now enter in specific illness and treatment/outcome information in an online registry tool that will provide researchers with valuable, hard to come by information about these rare diseases.

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International Pemphigus and Pemphigoid Foundation is Awarded Second Gold Triangle Award by the American Academy of Dermatology

The American Academy of Dermatology has announced that the International Pemphigus and Pemphigoid Foundation is a 2009 recipient of its prestigious Gold Triangle Award given for its patient website, www.pemphigus.org. The award will be presented at the association’s annual meeting in San Francisco in March of 2009.

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UNIRSE HOY!
El registro de p y p ha sido aprobado por la Junta de revisión institucional de occidental (WIRB) y activamente es inscribir participantes.

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