A major problem physicians and patients face when deciding on the treatment of rare diseases such as pemphigus and bullous pemphigoid is deciding on the best course to take. The decision is difficult as it is best made on the…
The Canadian Pemphigus and Pemphigoid Foundation (CPPF) is committed to making a difference in the lives of Canadians both locally and nationally. At the local level, we are deeply committed to establishing and helping to sustain as many support groups…
When the economy was crashing, I held my first fundraiser/awareness gathering knowing that a majority of the invitees were retirees. I’d never done anything like this before, but people who know me know when I believe in something, I am clear…
If you are interested in a relaxing weekend getaway, perhaps in the scenic Ashton-under-Lyne countryside, consider spending it with the PEM Friends (UK) June 27-28, 2009. Hosts Raymond and Carolyn open up their beautiful inn and stables to P/P patients…
It was with great sadness that I learned of the December 2008 passing of Harold Pinter, one of the world’s leading playwrights. Harold, 78, was a highly respected actor and poet in the UK.
The American Academy of Dermatology has announced that the International Pemphigus and Pemphigoid Foundation is a 2009 recipient of its prestigious Gold Triangle Award given for its patient website, www.pemphigus.org. Will Zrnchik, Directeur des Communications, accepted the award on behalf…
The initial aim of treatment is to induce disease remission and should be followed by a period of maintenance treatment using the minimum drug doses.
Registries empower patients to support their care and treatment while providing much needed data for researchers.
