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Archives mensuelles : Mars 2009

Supporting Fundraising/Supporting Awareness

When the economy was crashing, I held my first fundraiser/awareness gathering knowing that a majority of the invitees were retirees. I’d never done anything like this before, but people who know me know when I believe in something, I am clear

Publié dans Question 58 - Automne 2009

Get Ready for the PEM FriendsAway Weekend

If you are interested in a relaxing weekend getaway, perhaps in the scenic Ashton-under-Lyne countryside, consider spending it with the PEM Friends (UK) June 27-28, 2009. Hosts Raymond and Carolyn open up their beautiful inn and stables to P/P patients

Publié dans Question 58 - Automne 2009

Nobel Prize Winner and PV Patient Passes Away

It was with great sadness that I learned of the December 2008 passing of Harold Pinter, one of the world’s leading playwrights. Harold, 78, was a highly respected actor and poet in the UK.

Publié dans Question 58 - Automne 2009

IPPF Website Wins Second Gold Triangle Award

The American Academy of Dermatology has announced that the International Pemphigus and Pemphigoid Foundation is a 2009 recipient of its prestigious Gold Triangle Award given for its patient website, Will Zrnchik, Directeur des Communications, accepted the award on behalf

Publié dans Question 56 - Printemps 2009

Guidelines for the Management of Pemphigus Vulgaris

The initial aim of treatment is to induce disease remission and should be followed by a period of maintenance treatment using the minimum drug doses.

Publié dans Dans le monde entier

Orphan Diseases: Empowering Patients, Researchers and Clinicians through a Common Health Information Registry

Registries empower patients to support their care and treatment while providing much needed data for researchers.

Publié dans Dans le monde entier


Le registre de P/P a été approuvé par la Commission d'examen institutionnel ouest (WIRB) et est activement inscription des participants.