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Archives mensuelles : Mars 2009

Supporting Fundraising/Supporting Awareness

When the economy was crashing, I held my first fundraiser/awareness gathering knowing that a majority of the invitees were retirees. I’d never done anything like this before, but people who know me know when I believe in something, I am clear

Publié dans Question 58 - Automne 2009

Get Ready for the PEM FriendsAway Weekend

If you are interested in a relaxing weekend getaway, perhaps in the scenic Ashton-under-Lyne countryside, consider spending it with the PEM Friends (UK) June 27-28, 2009. Hosts Raymond and Carolyn open up their beautiful inn and stables to P/P patients

Publié dans Question 58 - Automne 2009

Nobel Prize Winner and PV Patient Passes Away

It was with great sadness that I learned of the December 2008 passing of Harold Pinter, one of the world’s leading playwrights. Harold, 78, was a highly respected actor and poet in the UK.

Publié dans Question 58 - Automne 2009

IPPF Website Wins Second Gold Triangle Award

The American Academy of Dermatology has announced that the International Pemphigus and Pemphigoid Foundation is a 2009 recipient of its prestigious Gold Triangle Award given for its patient website, www.pemphigus.org. Will Zrnchik, Directeur des Communications, accepted the award on behalf

Publié dans Question 56 - Printemps 2009

Guidelines for the Management of Pemphigus Vulgaris

The initial aim of treatment is to induce disease remission and should be followed by a period of maintenance treatment using the minimum drug doses.

Publié dans Dans le monde entier

Orphan Diseases: Empowering Patients, Researchers and Clinicians through a Common Health Information Registry

Registries empower patients to support their care and treatment while providing much needed data for researchers.

Publié dans Dans le monde entier

REJOIGNEZ AUJOURD'HUI!

Le registre de P/P a été approuvé par la Commission d'examen institutionnel ouest (WIRB) et est activement inscription des participants.

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