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Autumn Wishes

It’s the dog days of summer here in Sacramento, the two weeks in August where our temperatures rise above 100 day after day and the tomatoes drown the garden. By the time you get this we will have a break

Publié dans Question 54 - Automne 2008

Your Vote Counts

This is the last issue of the IPPF Newsletter before the November election. Please register to vote. I know I talk about this often, but I cannot emphasize enough how important it is to vote and hold our elected officials

Publié dans Question 54 - Automne 2008

The Medical Observer

Recent articles in the medical literature will be of interest to our readers. A Letter to the Editor in the April 2008 issue of the Journal of Ophthalmology discussed a preliminary study from Italy of intravenous immunoglobulins (IVIg) for the

Publié dans Question 54 - Automne 2008

It is what it isexcept when it isn’t

First I want to apologize for not having time to answer all the questions at the Dallas Conference in April. I answered additional questions which were emailed to me in the aftermath. If you still have one, please let me

Publié dans Question 54 - Automne 2008

Clinical Trials with IVIG and Cyclophosphamide

One of the newest treatments for pemphigus is intravenous immunoglobulin (IVIG). Immunoglobulins are one of the major classes of proteins in blood. IVIG is collected from normal blood donors, pooled, highly purified, and treated to destroy viruses and bacteria. IVIG

Publié dans Essais cliniques, Question 54 - Automne 2008

Speaking Out for Change

Editors Note: This is an excerpt from a letter we received from the daughter of a patient expressing her gratitiude for the Foundation and its efforts. We welcome letters like thisand letters for any reasonby postal

Publié dans Question 54 - Automne 2008

Support Groups: How WE Can Help

When I was first diagnosed with PV, I was devastated as most people are. It had come on very fast, three weeks from first symptom, and very viciously. I could not eat any solids, I could not stand

Publié dans Question 54 - Automne 2008

Have YOU Been Online Lately?

The IPPF website redesign continues to bring in compliments and comments from around the world. The IPPF Community site is where people interact with other patients and caregivers on all issues related to pemphigus and pemphigoid. You can register for

Publié dans Question 54 - Automne 2008

Let’s Raise Awareness

There have been two key challenges to raising awareness and funds about the devastating effects of pemphigus/pemphigoidto front-line medical professionals, donors, and corporate sponsors. In the early stages people tell me they feel ashamed, embarrassed, and frustrated when

Publié dans Question 54 - Automne 2008

LA BBQ Serves Up Good Times for Everyone

Every summer people fire up their grills and invite friends and family over for an old fashioned bar be que.

Publié dans Question 54 - Automne 2008


Le registre de P/P a été approuvé par la Commission d'examen institutionnel ouest (WIRB) et est activement inscription des participants.