Friday, 10 October 2008, PEM Friends will meet at 12.30pm for an informal lunch on the 6th floor of Peter Jones, Sloane Square, London. We’ll be joined by guest dermatologist, Dr. Jane Setterfield, BDS, MBBS, DCH, DRCOG, FRCP, who has…
PEM Friends, the UK wing of the IPPF, held their annual get-together at Carolyn and Raymond Blain’s estate Westerhill, near Ashton-under-Lyne, Greater Manchester, England, over the weekend of the 27-29 June 2008.
Because pemphigus and pemphigoid are such rare diseases, one of the biggest problems in achieveing successful treatment is misdiagnosis. Misdiagnosis is considered to be the most common cause of patient safety issues. Delays in treatment and malpractice suits are noted…
The IPPF recently was recognized by the Association of Marketing and Communications Professionals with FOUR awards! The MarCom Awards signify excellence in marketing and communications projects such as print, online, and video. GOLD AWARDDesign/Website – community.pemphigus.orgENewsletter – The Quarterly HONORABLE …
On Friday the 10 October 2008, we met for an informal and very leisurely lunch. It was in our usual London venue, i.e. the far right hand corner of the self-service restaurant on the 6th floor of Peter Jones, Sloane…
About once a year the Dutch Network for P&P organises a meeting for patients and their partners or caretakers. The last one was held 1 November 2008 at Poeldijk, the Netherlands. Eighteen people from all over the country were present.…
The LA Support Group got together on October 11, 2008, at the Westside Pavilion in Los Angeles, California. The Group was joined by UCLA’s Dr. Jennifer Haley and IPPF Founder and Director of Patients Services & Education, Janet Segall. The…
I am delighted to inform you that there is now an organization in Canada to help patients and caregivers better cope with these diseases. The Canadian Pemphigus and Pemphigoid Foundation based in Ottawa, Ontario was incorporated as a not-for-profit organization…
Research shows nearly 15% of all diagnoses are inaccurate, and misdiagnosis is even more common in cases of rare diseases such as P/P. How can doctors and dentists who have never seen a case of P/P more accurately diagnose patients…
A question that has been on the mind of many pemphigus/pemphigoid patients — and the subject of many discussions in the medical community — is regarding whether or not ACE inhibitors should be recommended to people with P/P disease if…
