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From the Top

By webadmin,

Posted by webadmin

On September 16, 2015
‘Tis the season for giving thanks and celebrating the holidays with those we love. Things can become so hectic that we forget to thank those around us for being a part of our lives.
Personally, I am thankful for my parents and their advice over the years. “Bird” and “Pops,” as they are affectionately referred to, were never short on tough love or supportive words. I thank my lovely wife, Christina, for her loving support and encouragement that make me a better person. I am thankful for my children, Will, Haley, Alannah, and Noah, and hope each of them support causes dear to their heart.
I thank Janet Segall for bringing me into the IPPF and our Board of Directors for giving me the opportunity to work with our wonderful coaches, advisors, and patients around the world. The underlying theme: I am thankful for the support of others and do my best to pay it forward.
The IPPF does more than support patients — it supports caregivers, family, friends, and physicians. Thank you to Marc Yale and our Peer Health Coaches who collectively have closed more than 500 cases this year answering calls, emails, and postings from people all over the world. Many of our “veteran” patients still remember that scared feeling they had before calling the IPPF and how relieved they felt after receiving support and information. They now pay it forward, helping others in our community.
Recently, a newly diagnosed patient’s daughter called the office. You could hear the relief in her voice when I told her, “Your mom will be fine. Now let’s focus on helping you understand the disease and treatments.” After, she sent me an email thanking me for the information, but more for just taking the time to talk to her. I replied: “No, thank you for calling.”
Yes, thank you for the calls, emails, and interactions that allow us to support one another. You should feel good knowing your involvement helps others at a time when they need the IPPF most.
From my family to yours, have a safe and joyous holiday and a Happy New Year!
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The International Pemphigus & Pemphigoid Foundation’s most important objectives are to provide patients and doctors worldwide with information about pemphigus and pemphigoid, and to provide patients and their caregivers much needed comfort and support so they can continue to live active, productive lives.
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