Helping us in the office will be not one, but two Cristo Rey High School student interns. For the fourth year in a row, we welcome back Kevin Cruz. Kevin has spent the past few years entering data into our patient database, uploading content to the website and Facebook page (who can forget his Chuck Norris quotes?), and other IT functions. This year he is working on patient and caregiver guides to provide essential information and tools.
And we welcome Freshman Isaac Silva who will help on the administrative side as he learns about our mission, programs, and services. Isaac will also help with the patient and caregiver guides to help him learn more about our community and how the diseases affect patients, caregivers, and families.
Cristo Rey Work Study allows low-income students to gain real-world experience in professional settings while receiving a private education. For more information on Cristo Rey High School Sacramento visit www.crhss.org.
And while I’m on the subject of helping move the IPPF forward, let’s keep talk volunteering. The IPPF needs people to help us keep overhead low and mission success high. For example, during 2012 there were 64.5 million volunteers in the United States. The United States Red Cross’ workforce is 94% volunteers (redcross.org). The Pacific Crest Trail Association (pcta.org) has over 1,600 volunteers along the West Coast. Please consider volunteering with the IPPF (related stories p. 6 and 11).
Pemphigus and pemphigoid awareness has always been an issue, but that is changing. In 2012 we helped introduce a resolution in New Jersey. The Canadian Prime Minister of Finance announced he had pemphigus vulgaris. Marc Yale visited Washington D.C. and spoke with members of the House and Senate. And our Awareness Campaign began to develop.
To help the IPPF with the Awareness Campaign, please join me in welcoming our new Awareness Program Manager, Kathryn Fraser, to our family. Kathryn is working with the Awareness Campaign Committee to develop next steps and prepare for a Best Practices Consensus Conference in Spring 2014. Along the way, Kathryn will provide updates right here in the Quarterly and online.
As our pemphamily grows, we remain close to one another online and in person. Family. That’s what we are.