Friday, September 15, 2017

  • Introduction to Pemphigus – Donna Culton, UNC, Chapel Hill (Download PDF)
  • Introduction to Pemphigoid – Razzaque Ahmed, Center for Blistering Diseases, Boston (Download PDF)

Saturday, September 16, 2017

Treatments & Care

  • Derm-Oral Combined Discussion – Joel Laudenbach, Western University, Pomona & Sergei Grando, UC Irvine
  • Topical Treatments Skin/Oral – Peter Marinkovich, Stanford University (Download PDF)
  • Steroids/Immunosuppressants – Donna Culton, UNC Chapel Hill (Download PDF)
  • Rituximab Therapy – Aimee Payne, UPenn (Download PDF)

Awareness Program

  • Awareness Program Updates & Video Presentation – Kate Frantz, IPPF (Download PDF)
  • Changing the Way Rare Diseases are Taught – Joel Laudenbach, Western University
  • Awareness Ambassador Update – Kate Franz & Bryon Scott, IPPF (Download PDF)

Workshops

  • Importance of Patients Participating in Clinical Trials – Animesh Sinha, University at Buffalo
  • Women’s Health with P/P – Vanessa Holland, UCLA
  • Future Targeted Therapies – Peter Marinkovich, Stanford University (Download PDF)
  • P/P Below the Belt – Razzaque Ahmed, Center for Blistering Diseases, Boston (Download PDF)
  • IVIg Therapy – Sergei Grando, UC Irvine (Download PDF)
  • Mental Health and Chronic Disease – Ivana Mitchell, Toronto (Download PDF)
  • Insurance Issues – Sabrina Yeamons, Kroger Specialty Infusion
  • Caregiving – Jack Light, St. Jude Family Caregiver Resource Center
  • How to De-Stress – Mei Ling Moore, IPPF Peer Health Coach

Sunday, September 17, 2017

Advocacy

  • Self Advocacy/Becoming an Advocate – Becky Strong, IPPF (Download PDF)
  • Legislative Advocacy/Patient Story – Hannah Heinzig, IPPF Patient Educator

Research

  • IPPF Research Program Update – Marc Yale, IPPF (Download PDF)
  • Research Innovations in P/P – Sergei Grando, UC Irvine (Download PDF)
  • Genetics – Animesh Sinha, University at Buffalo (Download PDF)
  • Future Trials of Targeted Therapies in Pemphigus – Aimee Payne, UPenn (Download PDF)
  • Future Trials of Targeted Therapies in Pemphigoid – Peter Marinkovich, Stanford University (Download PDF)
  • Clinical Trials and You – Annette Czernik, Mt. Sinai Medical Center, NY (Download PDF)

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