The 20th Annual IPPF Patient Conference

September 15th- 17th, 2017

Overview

Conference Overview

The 2017 IPPF 20th Annual Patient Conference will take place in Newport Beach, California. It will be co-hosted by Dr. Sergei Grando and Dr. Joel Laudenbach.

 

Friday, September 15, 2017

The conference kicks off at 4:00 pm with 2 sessions designed to give new patients or those wishing to expand their knowledge an introduction to pemphigus and pemphigoid. The IPPF will host a “Welcome Reception” from 6:00 pm – 7:00 pm giving attendees an opportunity to network. After the reception, you are free to relax and enjoy the accommodations or explore the surrounding areas of Newport Beach.

Saturday, September 16, 2017

The morning session highlights lectures and a Physician Roundtable with a Q&A session of the panelists. After lunch we will discuss disease awareness and hold several “workshops” on treatment and care of patients with pemphigus and pemphigoid.  The workshop sessions are after lunch (2:30 pm – 5:00 pm). There are 3 blocks of workshops, each lasting 40 minutes. The intent of the Organizing Committee is to allow patients hands-on, one-on-one, or small-group sessions with a chance to ask questions. Speakers are requested to speak for as long as they choose, but to please allow time for a healthy discussion. Afterwards, there will be a one-hour cocktail hour and an awards dinner with entertainment.

Sunday, September 17, 2017

We continue with presentations on advocacy and research. The focus will be on how patients can be more engaged in research and the future advancement of therapies for pemphigus and pemphigoid. The conference concludes around 12:30 pm.

Conference Venue

Event Venue: Hyatt Regency, Newport Beach

1107 Jamboree Road
Newport Beach, California, USA, 92660

A Luxurious Resort-Like Newport Beach Hotel

Immerse yourself in the true resort experience, including rooms with stunning views, three swimming pools, and a unique restaurant. Enjoy easy access to Newport Dunes for paddle boarding, kayaking, and boat rentals, and minutes from Newport Beach’s 10 miles of scenic coastline, Balboa Island and world-class shopping.

About Newport Beach

DISCOVER NEWPORT BEACH (from Visit Newport Beach California)

Beyond the radiant sun, sand and surf, discover the sophisticated charm of Newport Beach, California. A place so intoxicating, one taste of the perfect life will keep you coming back for more.From sunset cruises to surf lessons, wine tastings to harbor-front promenades, we offer more things to do and more ways to spend your stay. We invite you to relax, unwind and enjoy picturesque views of California’s sunrise and sunsets – paradise is what we call it.

With the largest recreational harbor on the west coast, there are ten miles of extraordinary fishing, swimming, surfing, and aquatic sports activities.Ten distinct neighborhoods make up Newport Beach, each with its own unique personality, natural beauty and story to share.Looking for a quiet escape? You will find an intimate seaside oasis that will tempt you with its elegance, modern shopping and stunning residential landscape.

Agenda

20th Annual IPPF Patient Conference

Hosted by Dr. Sergei Grando & Dr. Joel Laudenbach

 

Friday, September 15, 2017

  • 4:00pm – 5:00pm – Introduction to Pemphigus
  • 5:00pm – 6:00pm – Introduction to Pemphigoid
  • 6:00pm – 7:00pm – Welcome Reception

Saturday, September 16, 2017

  • 8:00am – 9:00am – Registration and Networking Breakfast
  • 9:00am – 9:30am  – Welcome, Conference Overview, Foundation Update
  • 9:30am – 9:50am  – One Patient’s Personal Story

Treatment & Care

  • 9:50am – 10:10am – Derm-Oral Combined Overview
  • 10:10am – 10:30am – Topical Treatments Skin/Oral
  • 10:30am – 11:00am – Steroids/Immunosuppressants
  • 11:00am – 11:20amBREAK
  • 11:20am – 11:40am – Rituximab Therapy
  • 11:40am – 12:00pm – Oral Care
  • 12:00pm – 12:30pm – Physician Q&A Panel
  • 12:30pm – 2:00pm – LUNCH

Awareness Program

  • 2:00pm – 2:10pm – Awareness Program Updates & Video Presentation
  • 2:10pm – 2:30pm – Changing the Way Rare Diseases are Taught/JDE Data

Workshops: Block # 1

2:30pm – 3:10pm – CHOOSE ONE:

  • Importance of Patients Participating in Clinical Trials
  • Women’s Health with P/P
  • How to De-Stress
  • P/P Below the Belt

Workshops: Block # 2

3:15pm – 3:55pm – CHOOSE ONE:

  • IVIg Therapy
  • Mental Health and Chronic Disease
  • Insurance Issues
  • Oral Care

3:55pm – 4:15pm BREAK

Workshops: Block # 3

4:20pm – 5:00pm – CHOOSE ONE:

  • Caregiving
  • Wound Care
  • Ophthalmology
  • Future Targeted Therapies

5:05pm – 5:10pm – End of Day Announcements

Social Mixer

6:00pm – 7:00pm

Awards Dinner / Entertainment

7:00pm – 10:00pm


Sunday, September 17, 2017

  • 8:00am – 9:00am – Networking Breakfast
  • 9:00am – 9:10am  – Welcome Back Opening Remarks

Advocacy

  • 9:10am – 9:25am – Self Advocacy/Becoming an Advocate
  • 9:25am – 9:40am – Legislative Advocacy/Patient Story
  • 9:40am – 10:00am – Access to Treatment
  • 10:00am – 10:30am – Patient Q/A Session

10:30am – 10:45am – BREAK

Research

  • 10:45am – 11:15am – Research Update
  • 11:15am – 11:30am – Genetics
  • 11:30am -11:45am – Future Clinical Trials
  • 11:45am – 12:00pm – IPPF Natural History Study

This is the preliminary agenda and is subject to change.

Travel & Hotel Information

Travel

John Wayne Airport, Orange County (SNA)

The Hyatt Regency Newport Beach is 5.6 miles from John Wayne Airport. The Hotel provides a complimentary shuttle which picks up hourly from 6:15am to 10:15pm.

By Car

The Hyatt Regency Newport Beach is located at 1107 Jamboree Road, Newport Beach, CA 92660  USA.
Self-parking is available at a discounted rate of only $10.00/day, including overnight.
Valet-parking is available at $20.00/day, and $36.00 overnight.

Hotel

This slideshow requires JavaScript.

HYATT REGENCY NEWPORT BEACH

1107 Jamboree Road
Newport Beach, California, USA, 92660

MAKING RESERVATIONS
The IPPF has secured a special room rate starting at $187/night. A dedicated website is now available for you to book their hotel rooms online or for additional assistance please contact (888) 421-1442 and reference the 2017 IPPF Annual Patient Meeting room block.

BOOK NOW

Thank you to our sponsors:

NX-SPLogo(4C)
Genentech
Kroger Specialty Infusion