Canadian Pemphigus and Pemphigoid Foundation
http://www.pemphigus.ca
The Canadian Pemphigus and Pemphigoid Foundation is a national not-for-profit corporation. Established in 2008, it aims to help Canadians who are suffering from these diseases obtain the help they need to better cope with their illness and the drugs used in their treatment. Our efforts focus on setting up and sustaining local support groups across the country, developing and distributing relevant information and education materials and working with other organizations and medical professionals who share our interests in improved health management strategies and finding a cure. A group of committed volunteers help develop and deliver our programs and services.
Australasian Blistering Disease Foundation
http://www.blisters.org.au/
The ABDF is a not-for-profit organization who fundraises for research into life-threatening blistering diseases, supporting patients and their families by providing information and a network of supporters with similar conditions.
Association Pemphigus - Pemphigoïde France
http://www.pemphigus.asso.fr/
Cette association (loi 1901) a été créée par des malades et leurs familles en mars 2005.
ANPPI - Associazione Nazionale Pemfigo/Pemfigoide Italy
http://www.pemfigo.it "una speranza in comune per una malattia singolare"
Il 16 /10/2009 ci siamo custituiti come Associazione di Volontariato per essere punto di riferimento verso i pazienti,
medici, centri di cura e per sostenere le esigenze di persone ammalate di pemfigo/Pemfigoide.
HealthAngle
http://www.healthangle.com/
HealthAngle helps people decrease stress associated with medical procedures and surgery, “take ownership” of their medical care and get better results. It does this in part by providing focused, easy-to-access, readable and relevant patient-to-patient information. HealthAngle also offers tools and resources to establish stronger connections between doctor and patient, allowing a better experience for everybody.
Pemphigus in Remission
http://www.pemphinremission.com/
Pemphigus in Remission is a website where patients can share their stories living with P/P successfully in a state of remission.
Israeli web sites
ynet: http://www.ynet.co.il/home/0,7340,L-2230-18160,00.html
Pemphigus Israel: http://www.pemphigus-israel.com
Netwerk Nederland voor Pemphigus en Pemfigoïd
http://www.pemphigus.nl/
Praktische informatie en advies op patiëntenniveau. Mogelijkheid voor contact met medepatiënten in een emailgroep en tijdens informele bijeenkomsten.
PEM Friends (UK)
http://www.pemfriends.co.uk
PEM Friends is dedicated to providing information and support to people living with pemphigus; including family members, friends and medical professionals who care about and care for them.
PV Network (UK)
http://www.pemphigus.co.uk
The Pemphigus Vulgaris Network is a voluntary, not-for-profit, group started in 1997 to provide information and support for people living with pemphigus and their relatives, friends and carers. We also provide an information resource for doctors and other medical professionals. We are part of the British Association of Dermatologists’ patient support group organisation and are members of the Skin Care Campaign, Long-term Conditions Alliance, and All Party Parliamentary Group on Skin.
National Family Caregivers Association
http://www.nfcacares.org/
NFCA educates, supports, empowers and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age.
InteliHealth Caregiving Zone
http://www.intelihealth.com/IH/ihtIH?t=9030&p=~br,IHW|~st,9030|~r,WSIHW000|~b,*|
Offers a free caregiver's email service in addition to information and advice.
Family Caregiver Alliance
http://www.caregiver.org/
FCA was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. FCA now offers programs at national, state and local levels to support and sustain caregivers.
Caregiving Information from AARP
http://www.aarp.org/families/caregiving/
AARP is a nonprofit membership organization of persons 50 and older dedicated to addressing their needs and interests.
American Academy of Dermatology (AAD)
The American Academy of Dermatology is the preeminent dermatologic association. With a membership of more than 15,000 physicians worldwide, the AAD is committed to advancing diagnosis, treatment, and research in dermatology.
http://www.aad.org
American Autoimmune Related Diseases Association (AARDA)
The American Autoimmune Related Diseases Association is dedicated to the eradication of autoimmune diseases and minimizing their suffering and socioeconomic impact. AARDA is the only national organization dedicated to the problem of autoimmunity.
http://www.aarda.org
National Institute of Health (NIH)
http://www.nih.gov
The National Institutes of Health (NIH) is the primary Federal agency for conducting and supporting medical research. NIH is the nation's medical research agency – making important medical discoveries that improve health and save lives.
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
http://www.niams.nih.gov/
The mission of NIAMS is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training scientists to carry out this research, and the dissemination of information.
National Center for Complementary and Alternative Medicine (NCCAM)
http://nccam.nih.gov/
Part of the NIH whose "purpose is to facilitate the evaluation of alternative medical treatment modalities to determine their effectiveness.
Miscellaneous Informational Sites
Your Child and Prednisone: http://www.classkids.org/library/pred.htm
American Dietetic Association: http://www.eatright.org
National Osteoporosis Foundation (NOF): http://www.nof.org/
USDA Nutrient Data Lab: http://www.nal.usda.gov/fnic/foodcomp/search/
USDA Food and Nutrition Information Center: http://fnic.nal.usda.gov/nal_display/index.php?info_center=4&tax_level=1&tax_subject=242
Links