The 2010 IPPF Annual Meeting will be held at the Sheraton Society Hill Hotel in Philadelphia, PA. There will be a Special Newcomers Reception sponsored by AxelaCare (who just so happen to have an office conveniently located a few miles from downtown Philadelphia!) at the hotel on Friday Night starting at 6pm. Old friends are encouraged to join us at 7 pm for laughter and libations. Mingle with the IPPF staff, doctors, and other patients and caregivers from around the world.
On Saturday morning, Dr. Grant Anhalt will open with "Introduction to Pemphigus & Pemphigoid" starting at 8 am. This is the perfect introduction for newly diagnosed patients and their caregivers. The meeting will last all day Saturday with snacks and beverages provided during breaks. This year, our Awards Luncheon is included in the price of your registration fee and will feature a keynote by Jay Matthews (University of the Sciences, Piladelphia). Jay will talk about how patients and patient organizations can advance orphan drug development. We will also announce the winners of our Community Project Grants.
Saturday immediately after the meeting ends for the day, we will host a Social Mixer. Join speakers, staff, board members, and fellow attendees to recap the day's events! Enjoy some refreshments and appetizers before taking in the local Philadelphia attractions and restaurants. Stay for a few hours, or have a drink and run out to enjoy the evening!
Sunday concludes our Annual Meeting. Ending about noon, there is still plenty of time for sightseeing before returning home.
Step back in time to colonial Philadelphia at the Sheraton Society Hill Hotel. Create memories with loved ones as you stroll along cobblestone streets and visit America’s most historic square mile, which includes such sites as Independence Hall and the Liberty Bell, just four blocks away.
After a busy day, wind down in our indoor heated swimming pool or whirlpool. When you’re ready to re-energize, head to our fitness center.
Call it a night in one our 365 guest rooms and suites and sleep easy in the celebrated “ahhhhh” of the Sheraton Sweet Sleeper (SM) Bed. Plus, you can stay connected while away with wireless High Speed Internet Access in all guest rooms, public areas, and the lobby.
Whether you’re flying in from the Philadelphia International Airport or pulling into Amtrak’s 30th Street Station, our hotel is easy to get to. You’ll be greeted with a smile and reassurance that your time spent here for business or pleasure is worth it.
Enjoy a stay you’ll always remember at the Sheraton Society Hill Hotel.
MAKE YOUR RESERVATIONS TODAY!
The IPPF has blocked rooms at the Sheraton Society Hill Hotel with a special room rate of $129/night (single or double). That's a savings of nearly $60 off their regular rate!
You must make your reservation using our room rate BEFORE March 31, 2010. You can reserve afterwards, but on an as available basis.
Reservations can be made by calling 1-800-325-3535 or visiting the (IPPF/Sheraton Website (http://www.starwoodmeeting.com/Book/pemphigus). Please inform them agent you are attending the IPPF Annual Meeting in order to get our preferred room rate.
*Guests are responsible for their own reservation, applicable taxes, and additional charges. Rates subject to change without notice.
Hotel Address
Sheraton Society Hill Hotel
One Dock St
Philadelphia, PA 19106
hotel information website |
hotel IPPF registration website
Tel: +1 800 325 3535
Directions
From Philadelphia International Airport
Take Interstate 95 North to Exit 20 (Columbus Boulevard). Turn left at the traffic light onto Columbus. Turn left turn at the sixth light, for Dock Street. Turn right at the stop sign. The hotel is on the right-hand side.
From East
Take Ben Franklin Bridge from Camden, stay in the right lane. Take the first right off of bridge to Sixth Street then follow Sixth Street to Market Street and turn left. Follow Market to Second Street and turn right. Follow Second Street to Dock Street and the hotel is on the left.
From North
Take Interstate 95 South to Exit 20 (Columbus Boulevard). At the bottom of the ramp, turn left onto Columbus Boulevard. Follow for 3 traffic lights to Dock Street and turn left. Continue to a dead end and turn right. The hotel will be on the right.
From West
Take Pennsylvania Turnpike to 76 East (Exit 326 - Valley Forge). Follow 76 East to 676 East (Exit 344 - Central Philadelphia). Continue on 676 East to Interstate 95 South. Take I-95 South to Penn's Landing (Exit 20). At the bottom of the ramp, turn left onto Columbus Boulevard. Follow to Dock Street and turn left. Continue to the dead end and turn right. The hotel is on the right-hand side.
Parking
The hotel has valet parking and free parking (located across the street). Please contact the hotel Front Desk at 1-800-325-3535 with any questions or to get instructions for parking.
Arts & Culture
- Independence Seaport Museum 0.1 km/0.1 miles
- Old City Art Galleries 0.3 km/0.2 miles
- Liberty Bell 0.4 km/0.3 miles
- Independence Hall 0.4 km/0.3 miles
- National Constitution Center 0.5 km/0.3 miles
- Betsy Ross House 0.5 km/0.3 miles
- Philadelphia Museum of Art 3.2 km/2.0 miles
- Rodin Museum 4.8 km/3.0 miles
Community
- University of Pennsylvania Hospital 0.8 km/0.5 miles
- Philadelphia Convention Center 1.0 km/0.6 miles
- Temple University 4.8 km/3.0 miles
- University of Pennsylvania 6.4 km/4.0 miles
Entertainment
- Ritz Theaters 0.2 km/0.1 miles
- Arden Theatre 0.4 km/0.3 miles
- Curtis Center 0.4 km/0.3 miles
- Lincoln Financial Field 8.1 km/5.0 miles
- Wachovia Center (Home of the 76ers) 8.1 km/5.0 miles
- Citizen's Bank Ballpark 8.1 km/5.0 miles
- Philadelphia Eagles 9.7 km/6.0 miles
- Philadelphia Phillies 9.7 km/6.0 miles
- Philadelphia Flyers 9.7 km/6.0 miles
- Philadelphia 76ers 9.7 km/6.0 miles
Local Attractions
- Customs House 0.2 km/0.1 miles
- Benjamin Franklin Court 0.2 km/0.1 miles
- 76 Carriage Company (Horse-Drawn Carriage Tours) 0.2 km/0.1 miles
- Spirit of Philadelphia 0.3 km/0.2 miles
- Public Ledger Building 0.5 km/0.3 miles
- Philadelphia Orchestra 3.2 km/2.0 miles
Nearby Destinations
- Penn's Landing 0.1 km/0.1 miles
- Downtown 1.0 km/0.6 miles
- Lancaster Amish Country 50.0 km/31.1 miles
- Pennsylvania Amish Country 80.5 km/50.0 miles
- Atlantic City, NJ 80.5 km/50.0 miles
Recreation
- Independence National Park 0.3 km/0.2 miles
- Adventure Aquarium 4.8 km/3.0 miles
- Sesame Place 37.0 km/23.0 miles
- Beaches of New Jersey Shore 80.5 km/50.0 miles
Shopping
- Gift Shop 0.0 km/0.0 miles
- South Street 0.5 km/0.3 miles
- Franklin Mills Mall 29.0 km/18.0 miles
Transportation
REGISTRATION: $175/person
Register ONLINE or DOWNLOAD a form and mail it in!
Your meeting registration includes:
- Friday Night Reception hosted by AxelaCare
- Admission to the Meeting
- Welcome Gifts/Meeting Souvenirs
- Door Prize Entries
- Ask the Experts Panel
- Saturday Awards Luncheon
- Saturday Evening Social Mixer
- and much, much more!
All locations are at the Sheraton Society Hill Hotel. Times and topics are tentative and subject to change.
FRIDAY, April 30, 2009
5:30-9:00 p.m. Registration
6:00-7:00 p.m. Newcomer Orientation - Sponsored by AxelaCare
7:00-9:00 p.m. Welcome Reception: Refreshments and fellowship
SATURDAY, May 1, 2009
7:30-9:00 a.m. Registration and continental breakfast
8:00-9:00 Orientation to P/P and Approaches to Treatment: Grant Anhalt
9:00-9:30 Welcome messages
9:30-9:45 BREAK & Move to Breakouts
9:45-10:30 BREAKOUTS
- HMP TRACK: Marc Yale (Sponsorship Avaiable)
- Friends and Family Partners (Scott Oling)
- To Be Determined
10:30-10:45 BREAK & Move to Main Hall
10:45-11:45 Plenary Session: Drs Payne & Stanley; Lay out the overview of basic science research, looking for targeted therapies for pemphigus. Our goal is to identify markers of just the disease causing antibodies.The way we’ve been approaching this is to clone pemphigus-causing antibodies from patients. We have made some very interesting discoveries about the pathogenic antibody “signature” that we hope can be translated into effective therapies for patients down the road.
11:45 - 1:15 pm Awards Ceremony Luncheon - Keynote address: Orphan Drugs and Patient Advocacy; Is There a Role for You? Jay Matthews
SYNOPSIS: A brief overview of the Orphan Drug Act, followed by a discussion on the impact of partnerships between patient advocacy groups and pharmaceutical companies.
Jay Matthews is a Registered Respiratory Therapist with extensive experience in clinical research. Jay worked for 7 years at the Children's Hospital of Philadelphia where he was Director of The Clinical Trials Office and Research Projects. Jay has a BS in Health and Business, and an MBA in Health and Medical Services Administration from Widener University. Jays is currently a PhD. candidate in Health Policy at the University of the Sciences Philadelphia where he is pursuing a dissertation focusing on orphan drugs and the interaction of patient advocacy groups. Jay is currently managing multiple clinical research projects in the United States and Canada for Merck Pharmaceuticals.
1:15 - 2:15 Plenary Session & Q&A: Dr. Ani Sinha, MD: "Why do patients have flares?" Report on the results of our recent survey results and outline the new study planned. How and why patients cycle through periods of activity (flares) and remissions.
2:15 - 2:30 BREAK and move to BREAKOUTS
2:30 - 3:15 BREAKOUTS:
- HMP TRACK
- P/P Below the Belt, Dr. RazzaqueAhmed, MD
- Wound Care - Danielle Malchano, National Rehab
- Oral Care: David Sirois, Ph.D. DMD
3:15 - 3:30 BREAK and Move to Main Hall
3:30 - 4:00: Laughter is the Best Medicine: Barbara Hee (Main Hall)
4:00 - 4:30: Ivig Studies and Information: Michelle Greer, Crescent Healthcare
4:30 - 5:30: Q&A
- IPPF BOD Roundtable
- Ask the Experts open panel: Drs. Anhalt, Werth, Sinha, Sirois, Payne
Casual Gathering or Free Night (Sponsorship Available)
BOD Meeting Offsite
SUNDAY, May 2, 2009
9:00-10:00 Plenary Session: Medications used to treat pemphigus: mechanisms of action, supporting evidence, and common side effects - Dr. Nicole Fett, MD.
10:00-11:00 Plenary Session: Treatment Advances and Q&A - Dr. Victoria Werth, MD
11:00-12:00 pm. BREAKOUTS
- HMP Track
- Group Session: Dr. Terry Wolinski-McDonald, Ph.D. Coping with Chronic Illness and Depression
- Q&A with available doctors, panel.
Victoria Werth, MD
University of Pennsylvania
John Stanley, MD
University of Pennsylvania
Aimee Payne, MD, PhD
University of Pennsylvania
Nicole Fett, MD
University of Pennsylvania
John Kempen, MD, PhD
University of Pennsylvania
Grant Anhalt, MD
John-Hopkins University
Animesh Sinha, MD, PhD
Michigan State University
David Sirois, DMD, PhD
New York University
Razzaque Ahmed, MD
Harvard University
and many others!
