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The IPPF is the world-leader in pemphigus and pemphigoid patient support. With over 3,500 patients and doctors around the globe, the IPPF provides the resources necessary to understand, cope, and live with these rare autoimmune diseases.
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2010 International Science Meeting | 2010 Annual Patient/Doctor Meeting | 2010 Media Sponsorship
The IPPF offers a variety of programs and services to reach the public with important pemphigus- and pemphigoid-related information. Our strategies involve dissemination and promotion directly to consumers, physicians and researchers. We welcome the opportunity to collaborate with corporations, patient support groups, government agencies, and non-profit organizations to expand the reach of important health messages.
Here are some ideas on how your organization can partner with the IPPF:
Educational Materials Distributed to the Public and to Physicians’ Offices
- Fact sheets – Designed to provide general information on pemphigus and pemphigoid symptoms and treatments.
- Brochures – Designed to provide comprehensive information for physicians' offices.
- the Quarterly – Our award-winning publication focuses on support, education, and awareness and is sent to patients, partners, and physicians' offices where it is seen by thousands of doctors, staff, and patients. Our Spring 2010 issue was our 60th issue and was sent to over 2,000 recipients alone.
Online Presence
Through our award-winning network of web sites, the IPPF can deliver information for the public in a variety of ways:
- News and Information – Our N&I site consolidates the latest news and information that affects the P/P community.
- Community Support – Our Community web site offers patients many ways of connecting with others around the world. Groups, forums, site messaging, and chat features give our P/P Community a safe and secure place to talk about their disease.
- eQuarterly – Our quarterly journal in an electronic format!
- P/P Registry – The IPPF Pemphigus/Pemphigoid Patient Registry is our data collection project that will provide researchers with valuable information on disease activity, medication results, and patient lifestyle. This information will also be used by treating physicians to better treat patients based on self-reported answers.
Live Events
- Annual Meetings – Our annual meetings are attended by over 125 patients and speakers. Past venues include Chicago, Miami, Las Vegas, New York, Dallas, Los Angeles, and Toronto (Canada).
- Scientific Meetings – Designed to provide information on an advanced level, these meetings are for P/P treating physicians and researchers. Speakers include international experts on P/P as well as poster sessions and product/service tables for sponsors.
Awareness Campaigns
The IPPF employs a variety of communications strategies to educate the public and consumer media about important P/P-related information.
- eBlasts – Our monthly eBlast is sent to 3,500 recipients and contains information on upcoming events, special offers, and information that promotes awareness, education, and support.
- Association Meetings – As a member of several patient organization and advocacy associations, the IPPF attends conferences (AAD, CSD, Yankee Dental, etc) to educate physicians on P/P.
- Partner Web sites – The IPPF attracts patients from other sites the offer information on P/P. Ad placement on our partner sites help P/P patients find information about their disease and treatments while directing them to our support services.
If your organization would like to collaborate with the IPPF on specific initiative, please contact Molly Stuart at molly@pemphigus.org or (916) 922-1298 extension 1002.
DOWNLOAD A SPONSOR PACKET TO FIND OUT MORE
2010 International Science Meeting | 2010 Annual Patient/Doctor Meeting | 2010 Media Sponsorship
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