The IPPF Awareness Campaign is a three-year project, which seeks to reduce the amount of time it takes a patient to receive an oral pemphigus vulgaris (PV) or mucous membrane pemphigoid (MMP) diagnosis. The average P/P patient will see five doctors over 10 months in search of a diagnosis and roughly 60-80% of patients will present symptoms orally first. Due to the high prevalence of oral symptoms, the Awareness Campaign focuses on oral PV/MMP, two forms of P/P with increased presentation in the mouth. Outreach is directed to dental professionals, who have the unique opportunity to shorten diagnosis times, as oral PV/MMP patients will often see a dentist as one of their first clinician contacts.
The campaign has five objectives:
- Engage in marketing and media tactics to facilitate 1) illness awareness leading to early recognition/diagnosis and 2) dissemination of information on best practices and treatments.
- Send Patient Educators to 19 U.S. dental schools to provide an emotional appeal to dental students, aiding in retention of oral PV/MMP curriculum.
- Provide 15 continuing education courses to dental professionals across the U.S. to update professionals on oral PV/MMP and encourage professionals to “put this on their radar.”
- Develop an oral PV/MMP Awareness Ambassador’s program in which IPPF community members provide outreach to dental professionals, build rapport with local media outlets and plan and/or participate in community outreach and awareness activities to educate the dental community and bring general awareness to oral PV/MMP.
Stay tuned for an Awareness Campaign website coming soon!
For more information on the Awareness Campaign, or how to get involved, contact Awareness@pemphigus.org.