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Archivi Mensili: June 2010

Debate Over Industry Role in Educating Doctors

In the latest effort to break up the often cozy relationship between doctors and the medical industry, the University of Michigan Medical School has become the first to decide that it will no longer take any money from drug and

Pubblicato in Around the Globe

P-P Registry Launched!

PEMPHIGUS-PEMPHIGOID PATIENT REGISTRY LAUNCHED.

Pubblicato in P-P Patient Registry, Press Releases

Annual Meeting Recap!

If you turn on a light switch for a room to illuminate it and then the television, do they both use the same amount of electricity? The answer is no, they do not. It felt as if a small village

Pubblicato in Issue 61 - Summer 2010

Summer is Almost Here!

We’re fresh off of the delight of connecting with everyone available at the Annual Meeting (AM) in Philadelphia. Read more in this issue and visit our website at www.pemphigus.org/2010AM for additional materials. The IPPF capstone project for 2010 is documenting

Pubblicato in Issue 61 - Summer 2010

Just Like the Name Says: Promoting Better Health for Those With P/P through the IPPF’sHealth ManagementProgram

Three years ago a joint task force of the IPPF comprised of expert members of our Medical Advisory Board, Janet Segall (IPPF Founder) and Centric Health Resources (a Missouri based company dedicated to improving the quality of life for people

Pubblicato in Issue 61 - Summer 2010

The Value of Sharing Experiences in P/P

At the 2010 Annual Meeting in Philadelphia there were many patients and doctors who have consistently attended the meetings as much for fellowship as for information. There were also patients who were newly diagnosed and needed basic education on pemphigus/pemphigoid.

Pubblicato in Issue 61 - Summer 2010

Acronym Smacronym: deciphering which project is right for you

At the Annual Meeting a few weeks ago, and on the feedback forms that we received, a lot of people made note of how hard it is/was to follow along with all the acronyms that those of us immersed (in

Pubblicato in Issue 61 - Summer 2010, Projects

Annual Meetings are More than a Patient-Disease Experience: Caregivers Get Support, Too!

This year’s annual meeting in Philadelphia was again a huge success because of the tremendous amount of information, knowledge, research and hope made available to patients and caregivers. It was also a family reunion for some of the regular attendees

Pubblicato in Issue 61 - Summer 2010

New Hope for Millions

Autoimmune (AI) diseases affect 30 million women—three times more than men—and diagnoses are rising in autoimmune disorders as varied as lupus, celiac, Sjogren’s syndrome and multiple sclerosis. But science has fixes in store. “We’re learning to detect disease earlier,” says

Pubblicato in Around the Globe

JOIN TODAY!

The P/P Registry has been approved by the Western Institutional Review Board (WIRB) and is actively enrolling participants.

ENGLISH VERSION