It’s the dog days of summer here in Sacramento, the two weeks in August where our temperatures rise above 100 day after day and the tomatoes drown the garden. By the time you get this we will have a break…

This is the last issue of the IPPF Newsletter before the November election. Please register to vote. I know I talk about this often, but I cannot emphasize enough how important it is to vote and hold our elected officials…

Recent articles in the medical literature will be of interest to our readers. A Letter to the Editor in the April 2008 issue of the Journal of Ophthalmology discussed a preliminary study from Italy of intravenous immunoglobulins (IVIg) for the…

First I want to apologize for not having time to answer all the questions at the Dallas Conference in April. I answered additional questions which were emailed to me in the aftermath. If you still have one, please let me…

Editors Note: This is an excerpt from a letter we received from the daughter of a patient expressing her gratitiude for the Foundation and its efforts. We welcome letters like this – and letters for any reason – by postal…

When I was first diagnosed with PV, I was devastated as most people are. It had come on very fast, three weeks from first symptom, and very viciously. I could not eat any solids, I could not stand —…

The IPPF website redesign continues to bring in compliments and comments from around the world. The IPPF Community site is where people interact with other patients and caregivers on all issues related to pemphigus and pemphigoid. You can register for…

There have been two key challenges to raising awareness and funds about the devastating effects of pemphigus/pemphigoid — to front-line medical professionals, donors, and corporate sponsors. In the early stages people tell me they feel ashamed, embarrassed, and frustrated when…

Every summer people fire up their grills and invite friends and family over for an old fashioned bar be que.