An injured consumer can sue a drug maker — but not a medical device maker?
매 달의 보관소： March 2009
Amanda and Her Support Network: Three Years Later and Still Going Strong
Much has happened since our daughter, Amanda Staso, was featured in the Winter 2006 issue of the Quarterly. At that time, she was in eighth grade, and had just started treatment with Dr. Grant Anhalt after receiving a diagnosis of…
문제 58 - 가 2009 에 올린 글
View from the Top
This issue of the Quarterly focuses on our theme of Support. Support is one of the founding principles of the IPPF, stated in our Mission as: The IPPF provides direct access to innovative and effective support that: promotes the very…
문제 58 - 가 2009 에 올린 글
The View from Here
One of our volunteers soliciting gifts for our Annual Meeting auction mentioned to me that several of the places she has contacted asked the question, ?Does this disease affect kids?? When they asked her that question, she thought, ?Yes, of…
문제 58 - 가 2009 에 올린 글
New IPPF BOD Member Brings Vast Experience to the Mix
The IPPF is pleased to welcome the newest member to our Board of Directors. Mindy Unger is a mother of three children, ages 19, 16, and 9 and is actively engaged in a number of philanthropic activities. Mindy graduated from…
문제 58 - 가 2009 에 올린 글
Annual Meeting Exclusive
In a number of P/P patients, standard treatment plans just don’t seem to work so other evidence-based treatments may be prescribed. IVIg or Rituximab two expensive treatments require approval by a patient’s medical plan. Many insurers choose to deny these…
문제 56 - 봄 2009 에 올린 글
Advances in Pemphigus Research
The IPPF has always been instrumental in supporting clinical and scientific meetings. In addition to supporting the American Academy of Dermatology’s (오) Symposium on Autoimmune Blistering Diseases, the IPPF is co-sponsoring the International Pemphigus Meeting in Bern, Switzerland in June…
문제 58 - 가 2009 에 올린 글
Raising Awareness in Boston: Yankee Dental Congress
Each year, the Massachusetts Dental Society, in cooperation with the dental societies of Connecticut, Maine, New Hampshire, Rhode Island, and Vermont, hosts the Yankee Dental Congress (YDC).
문제 58 - 가 2009 에 올린 글
Talking With Others About Your Diagnosis
Painful and scary symptoms no one seems to be able to explain or understand; a diagnosis you have never heard of before; understanding the actual illness; treatment options most of which have not been FDA approved or may be considered…
문제 58 - 가 2009 에 올린 글
Advocacy of the IPPF Through the National Health Council
A member of our Board of Directors and I attended the National Health Council’s (NHC) annual meeting February 11-13, 2009.The National Health Council sets operating Standards of Excellence for its members such as the IPPF and over 50 of the…
문제 58 - 가 2009 에 올린 글
