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매 달의 보관소: March 2009

Supporting Fundraising/Supporting Awareness

When the economy was crashing, I held my first fundraiser/awareness gathering knowing that a majority of the invitees were retirees. I’d never done anything like this before, but people who know me know when I believe in something, I am clear

문제 58 - 가 2009 에 올린 글

Get Ready for the PEM FriendsAway Weekend

If you are interested in a relaxing weekend getaway, perhaps in the scenic Ashton-under-Lyne countryside, consider spending it with the PEM Friends (UK) June 27-28, 2009. Hosts Raymond and Carolyn open up their beautiful inn and stables to P/P patients

문제 58 - 가 2009 에 올린 글

Nobel Prize Winner and PV Patient Passes Away

It was with great sadness that I learned of the December 2008 passing of Harold Pinter, one of the world’s leading playwrights. Harold, 78, was a highly respected actor and poet in the UK.

문제 58 - 가 2009 에 올린 글

IPPF Website Wins Second Gold Triangle Award

The American Academy of Dermatology has announced that the International Pemphigus and Pemphigoid Foundation is a 2009 recipient of its prestigious Gold Triangle Award given for its patient website, www.pemphigus.org. Will Zrnchik, Director of Communications, accepted the award on behalf

문제 56 - 봄 2009 에 올린 글

Guidelines for the Management of Pemphigus Vulgaris

The initial aim of treatment is to induce disease remission and should be followed by a period of maintenance treatment using the minimum drug doses.

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Orphan Diseases: Empowering Patients, Researchers and Clinicians through a Common Health Information Registry

Registries empower patients to support their care and treatment while providing much needed data for researchers.

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오늘 가입!

P/P 레지스트리 서쪽 기관 검토 위원회에 의해 승인 되었습니다. (WIRB) 그리고 적극적으로 등록 하는 참가자는.

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