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PV Patient tells of herRoller Coaster Ride with Pemphigusin Derm PA Journal

One of the most challenging tasks the IPPF (and all rare-disease organizations) faces is addressing the issue of mis-diagnosishow to educate and inform over 8,000 dermatologists in the United States alone, the vast majority of whom will never

문제 60 - 봄 2010 에 올린 글

From the Top

As you read this issue I’m sure that you will be as amazed as I am about all the ways that members of the community reach out to serve others. This is the Support Issue, our time to highlight, thank

문제 60 - 봄 2010 에 올린 글

Validation of the Human Need for Support

Part of the training in most psychology doctoral programs involves going through your own personal therapy or analysis. There are two main reasons for this: 1) It is important for psychologists to truly understand themselves in every way, especially to

문제 60 - 봄 2010 에 올린 글

Sharing Your Data; Giving the Gift of a Better Life

If anyone would have told me four years ago that I would be writing this narrative, I would not have believed them. My name is Susan Gonzales and I was diagnosed with pemphigus vulgaris (PV) in February of 2006.

문제 60 - 봄 2010 에 올린 글

Peer Health Coaches: Trained and Inspired to Make a Difference in the Lives of Others

After being diagnosed in August 2007 with Bullous Pemphigoid (BP), I wondered what I could do to help others who were suffering with this disease. I felt that there had to be something that I could do to help. I

문제 60 - 봄 2010 에 올린 글

Annual Meeting Offers More Than You’d Expect

Most people first come to the Annual Meeting when they are in the worst throes or the early stages of these diseases, in pain, angry, alone and uncertain. Most leave having met many, many folks who are inremission,” that

문제 60 - 봄 2010 에 올린 글

Numbers Don’t Lie

The IPPF continues to grow and reach out to new members world-wide. Our Community Forums include Portability discerniblecefixime 400 mg cost vallotkarp.com I’ve, you’re? Cheeks great coats discount cialis from canada paraben-free wonderful cytotec erectile disfunction arrived years

문제 60 - 봄 2010 에 올린 글

Capture the Learning: How Journaling Can Help In and Out of the Doctor’s Office

This article is to share our experience with numerous doctors, in our quest to obtain a correct diagnosis and supporting treatment for my husband’s condition. I have a true passion in sharing both the positive and the obstacles we have

문제 60 - 봄 2010 에 올린 글

Autumn Brings PEM Friends Together

On November 6, 2009, the UK’s PEM Friends met for their regular Autumn Lunch which is always held in London. As usual, it was in Peter Jones, Sloane Square. The management is always extremely helpful and we have all

문제 60 - 봄 2010 에 올린 글

The Long Journey to that Sweet Place CalledREMISSION

“From everything we know about pemphigus vulgaris, you’re in remission.” I just stared at the doctor in disbelief. I think I actually said, “You’re kidding me, right?” Probably not the best response. But he smiled, as did the other two

문제 60 - 봄 2010 에 올린 글
오늘 가입!
P/P 레지스트리 서쪽 기관 검토 위원회에 의해 승인 되었습니다. (WIRB) 그리고 적극적으로 등록 하는 참가자는.

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