Rare Disease Day
February 28th, 2017 marks the 10th International Rare Disease Day coordinated by the European Organization for Rare Disorders (EURORDIS). On and around this day, hundreds of patient organizations from countries and regions all over the world will hold awareness-raising activities based on the theme of research.
Rare Disease Week on Capitol Hill:
Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. More information is available at the Rare Disease Legislative Advocates website.
IPPF Research Grant Deadline
Schedule for Applications:
- Letter of Intent deadline for FY 2017 is February 28, 2017.
- The application deadline for FY 2017 is March 31, 2017.
- 2017 award announcements will be made on June 30, 2017.
- Funds available August 1, 2017.
More info on our Research Grants page.
Tri-State Support Group Meeting
Sunday, March 19th, 1-3 pm at Touro College
More info to come.
Patient Education Calls
Our next scheduled call to be announced soon.