Chronic Diseases & The Internet Report: Impact for Pharma
Posted on April 20, 2010You may have seen the headline that U.S. adults living with chronic disease are significantly less likely than healthy adults to have access to the internet (62% vs. 81%). I finally got a ...Read more »Herpetiform Pemphigus Clinically Resembling Bullous Pemphigoid
Posted on April 13, 2010Herpetiform pemphigus was first introduced by Jablonska in 1975, as a variant of pemphigus that combines the clinical features of dermatitis herpetiformis with the immunological features of pemphigus. Because of its rare and ...Read more »In Reporting Symptoms, Don’t Patients Know Best?
Posted on April 12, 2010About six years ago, my doctor gave me some samples of a drug to treat pain from an injury. I took it for a few days and then woke up one morning ...Read more »Judge Invalidates Human Gene Patent
Posted on March 29, 2010A federal judge on Monday struck down patents on two genes linked to breast and ovarian cancer. The decision, if upheld, could throw into doubt the patents covering thousands of human genes ...Read more »Social Networks a Lifeline for the Chronically Ill
Posted on March 24, 2010A former model who is now chronically ill and struggles just to shower says the people she has met online have become her family. A quadriplegic man uses the Web to share ...Read more »From the Top
Posted on March 23, 2010As you read this issue I’m sure that you will be as amazed as I am about all the ways that members of the community reach out to serve others. This is ...Read more »Validation of the Human Need for Support
Posted on March 23, 2010Part of the training in most psychology doctoral programs involves going through your own personal therapy or analysis. There are two main reasons for this: 1) It is important for psychologists to ...Read more »Sharing Your Data; Giving the Gift of a Better Life
Posted on March 23, 2010If anyone would have told me four years ago that I would be writing this narrative, I would not have believed them. My name is Susan Gonzales and I was diagnosed with ...Read more »Peer Health Coaches: Trained and Inspired to Make a Difference in the Lives of Others
Posted on March 23, 2010After being diagnosed in August 2007 with Bullous Pemphigoid (BP), I wondered what I could do to help others who were suffering with this disease. I felt that there had to be ...Read more »Annual Meeting Offers More Than You’d Expect
Posted on March 23, 2010Most people first come to the Annual Meeting when they are in the worst throes or the early stages of these diseases, in pain, angry, alone and uncertain. Most leave having met ...Read more »
IPPF News
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The latest Pemphigus & Pemphigoid Weekly! paper.li/healourskin/13… Thanks to @diabetesfuna @GlobalGenes @Immunotx_papers #raredisease #nord
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Save the date! 2018 Annual Patient Conference Raleigh-Durham, NC October 12-14 Hosted by Donna Culton, MD (UNC Depa… twitter.com/i/web/status/9…
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The latest Pemphigus & Pemphigoid Weekly! paper.li/healourskin/13… Thanks to @HSP_90 @RareDiseases @ThriveChiroFL #nord #progress
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The latest Pemphigus & Pemphigoid Weekly! paper.li/healourskin/13… Thanks to @RareDiseases @TregCellRadar @ImmunePharma #raredisease #nord
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Checkout the latest from PemPress: Strategies for Managing Pemphigus and Pemphigoid ift.tt/2GgsIux… twitter.com/i/web/status/9…