“Coaches Corner” – In Case of Emergency
Posted on March 23, 2018Even if you don’t have a medical condition, it’s always wise to have your medical information accessible ICE (In Case of Emergency). It’s a good idea to wear a medical alert bracelet ...Read more »“Coaches Corner” – Keeping All Your Doctors in the Loop
Posted on January 4, 2018Now that you know what you have been diagnosed with, it is important that all of the doctors who treat you are aware of pemphigus and pemphigoid (P/P), too. This includes pemphigus vulgaris, ...Read more »“Coaches Corner” – When Tapering From Prednisone
Posted on September 30, 2016In the beginning of treating a bullous skin disease like pemphigus, prednisone is usually prescribed. A high dosage over time, can be tapered down. While we are thrilled that the dosage is being ...Read more »“Coaches Corner” – Hair Loss
Posted on June 15, 2016Although the scalp can be frequently involved with pemphigus/pemphigoid, associated hair loss has only rarely been described. In one case, treatment with oral and topical corticosteroids combined with mycophenolate mofetil resulted in ...Read more »“Coaches Corner” – Dealing With Insurance and Lab Work
Posted on November 24, 2015Dealing with insurance is not fun, especially when you’re in pain, and don’t know what the future holds. My experience has shown, that the first place to start when you have a problem ...Read more »“Coaches Corner”- Keep All of Your Doctors in the Know
Posted on November 24, 2015Most individuals have a primary care physician. Many have a dentist. Many women have an OB/GYN for women’s health. There are a variety of specialists’ that one may have: Internists, Ear/Nose & ...Read more »“Coaches Corner” – Prednisone
Posted on November 2, 2015In a previous Coaches Corner I have given prednisone tips. It is a good time now for an update as there are new patients who are diagnosed and who are leery of ...Read more »“Coaches Corner” – It’s Worth the Appeal
Posted on October 9, 2015After months of uncertainty waiting for a diagnosis and finally finding a physician who can treat your rare skin disease, you return from the mailbox with a denial letter from your insurance ...Read more »“Coaches Corner” – A Measure of Improvement
Posted on September 18, 2015Pemphigus and pemphigoid (P/P) can take a long time to improve or reach remission. The process can take months or even years. Although it may seem that this disease appeared overnight, in ...Read more »“Coaches Corner” – Moving to a New State
Posted on August 31, 2015This article is meant for those of you who have recently or about to move to a new area. After living in the greater Seattle area for 58 years, I moved to ...Read more »
The Coaches Corner
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The latest Pemphigus & Pemphigoid Weekly! paper.li/healourskin/13… Thanks to @diabetesfuna @GlobalGenes @Immunotx_papers #raredisease #nord
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Save the date! 2018 Annual Patient Conference Raleigh-Durham, NC October 12-14 Hosted by Donna Culton, MD (UNC Depa… twitter.com/i/web/status/9…
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The latest Pemphigus & Pemphigoid Weekly! paper.li/healourskin/13… Thanks to @HSP_90 @RareDiseases @ThriveChiroFL #nord #progress
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The latest Pemphigus & Pemphigoid Weekly! paper.li/healourskin/13… Thanks to @RareDiseases @TregCellRadar @ImmunePharma #raredisease #nord
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Checkout the latest from PemPress: Strategies for Managing Pemphigus and Pemphigoid ift.tt/2GgsIux… twitter.com/i/web/status/9…