HARTFORD — In the 1950s, children with cystic fibrosis usually died before they reached kindergarten age, their airways choked with mucus by a genetic disorder that disrupts their ability to clear infections from their lungs.
Maandelijks archief: December 2009
2002 Study Continues to Shine Light on PV
Research in 2002 by Drs. Bhol and Ahmed help today’s researchers uncover PV characteristics.
Geplaatst in Around the Globe
Some Causes of Stomatitis
Oral inflammation and ulcers, known as stomatitis, may be mild and localized or severe and widespread.
Geplaatst in Around the Globe
Bullous pemphigoid and pemphigus vulgaris
Objective To determine the incidence of and mortality from bullous pemphigoid and pemphigus vulgaris in the United Kingdom.
Geplaatst in Around the Globe
Pfizer Deal Signals a Move Into Treating Rare Diseases
The world’s largest drug company is thinking small.
Geplaatst in Around the Globe
Working at the IPPF: 101
PV, HTML, BP, CSS, MMP… if being a teenager wasn’t already hard enough!How do you even pronounce it? by Lillian DoddCristo-Rey High School, Sacramento CAIPPF Intern Hi, my name is Lillian Dodd; I am a freshman at Cristo Rey High…
Geplaatst in Issue 59 - Winter 2009
Capture the Learning: How Journaling Can Help In and Out of the Doctor’s Office
This article is to share our experience with numerous doctors, in our quest to obtain a correct diagnosis and supporting treatment for my husband’s condition. I have a true passion in sharing both the positive and the obstacles we have…
Geplaatst in Issue 60 - Spring 2010
Remembering Former Houston Support Group Leader, Richard Schwartz
Recently, Richard Schwartz, a terrific person, my friend, and a friend to the IPPF, passed away. Richard had a very bad case of pemphigus when we first talked many years ago. But no matter how difficult a time he was…
Geplaatst in Issue 59 - Winter 2009
Autumn Brings PEM Friends Together
On November 6, 2009, the UK’s PEM Friends met for their regular Autumn Lunch which is always held in London. As usual, it was in Peter Jones, Sloane Square. The management is always extremely helpful and we have all…
Geplaatst in Issue 60 - Spring 2010
The Long Journey to that Sweet Place Called “REMISSION”
“From everything we know about pemphigus vulgaris, you’re in remission.” I just stared at the doctor in disbelief. I think I actually said, “You’re kidding me, right?” Probably not the best response. But he smiled, as did the other two…
Geplaatst in Issue 60 - Spring 2010
