In the latest effort to break up the often cozy relationship between doctors and the medical industry, the University of Michigan Medical School has become the first to decide that it will no longer take any money from drug and…
Maandelijks archief: June 2010
P-P Registry Launched!
PEMPHIGUS-PEMPHIGOID PATIENT REGISTRY LAUNCHED.
Geplaatst in P-P Patient Registry, Press Releases
IPPF Members in Action
I wanted to let you know that I took some advice from the 2010 Annual Meeting! When I came home, I had an appointment with my oral surgeon (a professor at the University of Michigan). I was discussing the meeting…
Geplaatst in Issue 61 - Summer 2010
Annual Meeting Recap!
If you turn on a light switch for a room to illuminate it and then the television, do they both use the same amount of electricity? The answer is no, they do not. It felt as if a small village…
Geplaatst in Issue 61 - Summer 2010
Summer is Almost Here!
We’re fresh off of the delight of connecting with everyone available at the Annual Meeting (AM) in Philadelphia. Read more in this issue and visit our website at www.pemphigus.org/2010AM for additional materials. The IPPF capstone project for 2010 is documenting…
Geplaatst in Issue 61 - Summer 2010
Just Like the Name Says: Promoting Better Health for Those With P/P through the IPPF’s “Health Management” Program
Three years ago a joint task force of the IPPF comprised of expert members of our Medical Advisory Board, Janet Segall (IPPF Founder) and Centric Health Resources (a Missouri based company dedicated to improving the quality of life for people…
Geplaatst in Issue 61 - Summer 2010
The Value of Sharing Experiences in P/P
At the 2010 Annual Meeting in Philadelphia there were many patients and doctors who have consistently attended the meetings as much for fellowship as for information. There were also patients who were newly diagnosed and needed basic education on pemphigus/pemphigoid.…
Geplaatst in Issue 61 - Summer 2010
From Time to Time You Need a “Tune-up”
I’ll wager that when your automobile’s “check engine” indicator flashes on, you quickly get your car into the repair shop. So why, when my personal “check engine” light flashed, did I ignore it? When I was diagnosed with Pemphigus Vulgaris…
Geplaatst in Issue 61 - Summer 2010
Acronym Smacronym: deciphering which project is right for you
At the Annual Meeting a few weeks ago, and on the feedback forms that we received, a lot of people made note of how hard it is/was to follow along with all the acronyms that those of us immersed (in…
Geplaatst in Issue 61 - Summer 2010, Projects
Annual Meetings are More than a Patient-Disease Experience: Caregivers Get Support, Too!
This year’s annual meeting in Philadelphia was again a huge success because of the tremendous amount of information, knowledge, research and hope made available to patients and caregivers. It was also a family reunion for some of the regular attendees…
Geplaatst in Issue 61 - Summer 2010
